Posts Tagged ‘parkinsons’

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Parkinson’s nurses in action – Tony and Jenny

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


My [Parkinson’s] Life – Massud Chopan

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s.  Massud Chopan Massud Chopan, 37, was a sports fanatic at school and worked for his dad during the school holidays…


Women with Parkinson’s

“Finding information about being a woman with Parkinson’s was challenging” By Kathleen Reardon I was diagnosed with Parkinson’s in 2002. I’d noticed something not quite right at the age of 49 but it took over two years of disagreements about what was wrong with me. Doctors disagreed, mainly because I…


Travelling with Parkinson’s

Travelling with Parkinson’s It’s the time of year for holidays, family gatherings and travel for people with Parkinson’s. Most travel-related issues can be avoided with a little planning. Here’s a few tips. When researching your trip online use the accessibility search option Web sites like Trivago and TripAdvisor allow you…


Parkinson’s Australia restructuring

Parkinson’s Australia restructuring The Board of Parkinsons Australia decided to restructure the organisation at its latest Annual General Meeting. The President and CEO have left their positions. The newly elected President and Board Members have embarked on a six-month consultation with senior staff of State Parkinson’s bodies. The objective is…


Parkinson’s nurses in action – Nicole

Parkinson's Specialist nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s.  These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Parkinson’s nurses in action -Judy

PARKINSON’S SPECIALIST NURSES IN ACTION Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s.  These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


My DBS Journey – Sharyn

My DBS Journey - Sharyn Sharyn, aged 70 Had DBS surgery in February 2020  Sharyn has lived in Cooma for 42 years. Back in 2008 she was working in childcare when she began to think she had Parkinson’s. “I suspected I had it because two of my father’s cousins and…


Are we close to a cure for Parkinson’s?

How close are we to a cure for Parkinson’s? Saskia Mair of Parkinson’s Life interviews Sohini Chowdhury, Deputy CEO of the  Michael J Fox Foundation. How close do you think the scientific community is to finding a cure for Parkinson’s? Whenever I say the word ‘cure’, I kind of put…


Voice changes for early Parkinson’s diagnosis?

Voice changes for early Parkinson’s diagnosis? Researchers at Monash University in Melbourne are studying the vocal cords of people with Parkinson’s to determine whether measuring voice changes – an early sign of the condition –could improve early diagnosis. As part of the trial, 31 people with different severities of Parkinson’s…


Exercising in different climates

Research into exercise in different climates Researchers at James Cook University (JCU) and La Trobe University conducting research with ambulatory patients who are performing twice-weekly exercises that  include aerobics plus strengthening or flexibility training. Research has found that Parkinson’s patients who exercise for at least 2.5 hours weekly also experience a slower decline in their…


Driving and Parkinson’s

Advice on driving with Parkinson’s Surrendering your driver’s license is like surrendering your independence – but unfortunately that time must come at some point in your Parkinson’s journey. It is important to remember that Parkinson’s can affect your ability to self-evaluate. Therefore, it is a good starting point to discuss…


Useful Advocacy Organisations

By definition advocacy is an activity by an individual or group that aims to influence decisions within political, economic, and social institutions.  Advocacy includes activities and publications to influence public policy, laws and budgets by using facts, their relationships, the media, and messaging to educate government officials and the public.* Useful advocacy organisations Australian Government Aged Care Quality and…


Parkinson’s and REM sleep

Parkinson’s and REM Sleep Behaviour Disorder During Rapid Eye Movement (REM) sleep cycles, most people are effectively paralysed, so they don’t act out dreams. However, a third of all people with Parkinson’s disease also have REM Sleep Behaviour Disorder – a condition that removes sleep paralysis and can cause people…


Free Speech Pathology

Free Speech Pathology in Sydney Who runs the group? UTS Speech Pathology students. They are supervised by a qualified Speech Pathologist. When? Appointments available on Monday, Tuesday, Thursday and Friday. Where? The UTS Clinic is in Sydney at 100 Broadway, Ultimo. We can also see people online via Telepractice. How…


Newly Diagnosed Parkinson’s Packs

Newly Diagnosed Pack now available faster online Newly diagnosed with Parkinson’s. Need information asap? Parkinson’s NSW can help with that. [caption id="attachment_5990" align="alignnone" width="480"] Call Parkinson's NSW InfoLine 1800 644 189[/caption] Now that Australia Post deliveries are less frequent – and even unreliable in some areas – we have developed…


Getting good sleep and rest

Getting good sleep and rest The physical symptoms of Parkinson’s can sometimes cause sleep disturbances and prevent adequate rest. The restorative effects of sleep can improve health and help people living with Parkinson’s  better manage the disease on a daily basis, so ensuring you get enough quality sleep is essential. The Parkinsons Foundation has…


Parkinson’s medication and daylight savings

Parkinson's medication, sleep and daylight savings The change from Eastern Standard Time to Daylight Saving Time will take place at 2am on Sunday, 4 October. The clock will spring forward 1 hour. And if you're out and about Bunnings Sausage Sizzles resume on weekend commencing October 3 in NSW. We…


COVID-19 and the link to Parkinson’s

COVID-19 and the link to Parkinson's On 23 September 2020, the ABC  published a story online  titled Experts warn coronavirus may cause 'wave' of neurological conditions including Parkinson's disease about Australian research into the potential of COVID-19 to cause longer term damage to the brain, leading to conditions such as Parkinson’s. This…


Tips on preparing for a Neurologist appointment

Tips on preparing for a Neurologist appointment Most people living with Parkinson’s see their neurologist every three to six months initially, then every six to 12 months. However, if you are experiencing problems with your Parkinson’s or its treatment, more frequent visits may be required. As you are no doubt…


People living with Parkinson’s leave work five years after diagnosis

People living with Parkinson’s leave work five years after diagnosis A Europe-wide study into the impact of Parkinson’s on employment highlights how quickly people with the condition are forced to leave work after diagnosis – and why. The study found that on average, people living with Parkinson’s leave work five…


What makes a good Support Group Leader? And why volunteer for the role?

What makes a good Support Group Leader? And why volunteer for the role? Becoming part of a Support Group Leadership Team (Committee) can be both challenging and rewarding. If, in your Group, the Leadership Team gets stuck with doing all the work… then something is wrong. The role of the…


Parkinson’s NSW nurses drive education benefiting people living with Parkinson’s

Parkinson’s NSW nurses drive education benefiting people living with Parkinson’s Clinical Nurse Consultant Vince Carroll – who is based in the Mid North Coast Local Health District – and Sydney-based Parkinson’s Registered Nurse Julie Austin recently participated in a collaborative project with the Health and Education Training Institute (HETI) and…


7 ways to help your loved one with Parkinson’s

7 ways to help your loved one with Parkinson’s. It goes without saying that you want to do your best to help your loved one with Parkinson’s. But what does that mean in a practical sense? For most of us who aren’t natural-born caregivers, we need some time to learn…

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