Take part in research

Take part in research

Research into Parkinson’s continues to be on the rise in Australia and internationally.

Taking part in a research project may result in a better understanding of, or better treatment or a potential cure for Parkinson’s. In some cases, research projects may provide access to new interventions before they are widely available.

Below are current research projects looking for participants

Project Title
A questionnaire investigating access barriers to speech pathology services for people with Parkinson’s disease in rural and regional New South Wales

Project Aim
The aims of this questionnaire are to determine what speech pathology services are available to people with Parkinson’s disease (PWPD) in rural and regional NSW, the potential barriers PWPD face when living in rural and regional NSW when accessing speech pathology services, and the effects of these barriers on the quality of life (QoL) for PWPD. This study aims to investigate the link between accessibility to speech pathology services and health outcomes for people with Parkinson’s disease in rural and regional NSW as compared to other healthcare services. With this survey, we plan to get insight into your speech pathology needs, what services are available, barriers you face when accessing these services, and what effects those barriers have on your quality of life.

Benefits of the Project
This research will allow us to learn more about how accessibility to speech pathology services, or lack thereof, impacts PWPD in rural and regional NSW. Not only in health outcomes, but also in overall quality of life. It may lead to future research into the accessibility of services, as well as shape policy decisions for additional services, funding, and facilities available to people with Parkinson’s disease in rural and regional NSW. It can also help advocate for further funding and training for speech pathologists treating the speech problems associated with PD in these communities.

General Outline of the Project
The project will involve participants completing an anonymous electronic questionnaire containing questions about demographics, Parkinson’s disease diagnosis, quality of life, health and speech pathology service availability, and health and speech pathology service satisfaction.

Participant Involvement
Participants who agree to participate in the research will be asked to:
1. Read the participant information provided at the start of the questionnaire.
2. Tick a box at the start of the questionnaire indicating your consent.
3. Complete and submit a questionnaire.
4. Participants can choose to include their email address in order to ‘opt in’ to receiving feedback post-project.
Email addresses will be collected on a final page of the survey and separated from the main questionnaire data in order to retain your anonymity.
Participation in the research is completely voluntary and participants may, without any penalty, decline to take part or withdraw at any time without providing an explanation or refuse to answer a question.

Survey will be open on 16 May 2022 and will be available for four weeks

Click here to take part in this survey

Researcher
Elizabeth Brown
Faculty of Health, Master of Speech Pathology
0467 898 322
u3225866@uni.canberra.edu.au

Supervisor
Helen Southwood
+61 2 62068420
Helen.Southwood@canberra.edu.au

Investigating the effects of online singing groups for people living with Parkinson’s.

  • No musical talent or experience required
  • Learn new music skills
  • Express yourself musically in a supportive group setting
  • Contribute to Parkinson’s research
  • Chat and connect with others online

This research involves:

  • Online ParkinSong singing group attendance for 12 weeks
  • 90 minutes per week
  • Assessment of Parkinson’s symptoms conducted before and after the ParkinSong online program

To register interest contact Fight Parkinson’s (formerly known as Parkinson’s Victoria) (03) 8809 0400

Download the flyer for more information here

To read about the study protocol published in BMJ Open, which states trial registration and ethics approval details please click here

A collaborative project between the research teams at University of Western Australia and The University of Notre Dame Australia are investigating the non-motor symptoms of Parkinson’s.

The research team have been working in the Parkinson’s space for 5 years and invite people living with Parkinson’s to participate in an anonymous online survey (2020/ET000196). This survey will take approximately 30-45 minutes to complete.

For more information view the flyer

The survey can be accessed by clicking this link 

Contact details:
Madison Hoes
madison.hoes@research.uwa.edu.au

Associate Professor Ryan Anderton
ryan.anderton@nd.edu.au

Integrate: A tailored and multifactorial program for safe mobility in people with Parkinson’s disease

The Integrate program is delivered in participant’s homes by physiotherapists and occupational therapists, and runs for 6 months. It includes three components: behavioural modification, environmental modification and exercise.

Volunteers with Parkinson’s disease (and where appropriate, their care-partners), are needed for a study investigating the effectiveness of the Integrate program: a program designed to improve the mobility of people with Parkinson’s disease. The aim of the study is to compare the effects of the Integrate program to usual care.

You may be eligible to participate if you have Parkinson’s disease and:

  • have fallen at least twice in the last 6 months,
  • are able to walk at least 10 metres on your own (with or without a walking aid)
  • do not have any other neurological problems (eg stroke) or uncontrolled health conditions (eg angina)

This study is being conducted by a team of researchers from the University of Sydney, and Neuroscience Research Australia, led by Dr Natalie Allen. All assessments and intervention will be carried out in participant’s homes.
Dr Natalie Allen, Senior Lecturer – Discipline of Physiotherapy, Faculty of Health Sciences at the University of Sydney

Download the flyer

Contact information:

Name: Dr Natalie Allen

Phone: 0468 322 724

Email: natalie.allen@sydney.edu.au

Neuroscience Research Australia (NeuRA) and The University of New South Wales are looking for volunteers to take part in the Parkinson’s stepping study.

The aim is to improve voluntary and reactive stepping in people with Parkinson’s , all whilst playing enjoyable games in your own home and attending 3 slips and trips training sessions in NeuRA’s lab (Sydney).

It is hoped the stepping training program done at home and at NeuRA will result in reducing fall risk in people living with Parkinson’s.

Who can be part of this research study?

  • Diagnosed with Parkinson’s
  • Living in metropolitan Sydney
  • Willing to commit to the study for 12 weeks

Download the flyer

Contact information:

Name: Paulo Pelicioni

Email: p.pelicioni@neura.edu.au

Phone: 02 9399 1024

Website: www.neura.edu.au

Find out more

IQVIA Australia invites you to participate in a market research study that aims to understand the treatment journey of people diagnosed with Parkinson’s disease and their experience being on device-assisted therapies.

This would involve your participation in a 60-minute online interview. If you are selected to participate and complete the interview, we offer a reimbursement of $100 in recognition of your time.

Please click on the link below for more information about this research and to see if it is relevant for you.

https://survey.us.confirmit.com/wix/p427674013759.aspx

 

Many thanks for your consideration.