A monthly review of the top five issues raised in calls to the Parkinson’s NSW InfoLine team (call 1800 727 567).
1. Feeling “Deconditioned” After the Holidays
Early in the year we often receive calls from people who feel they’ve gone backwards. Routines changed over the holidays, exercise programs paused, and the heat didn’t help. It’s common to feel more stiff, slower, or less steady than before.
The key is not to panic. Start small and rebuild gradually. Gentle stretching, short walks, or returning to your usual Parkinson’s-specific class can help you regain confidence and strength. Progress doesn’t have to be dramatic; consistency is what matters. If you’re unsure how to restart safely, our InfoLine can help connect you with appropriate exercise programs or physiotherapists.
2. Newly Diagnosed – Take a Breath
We’ve spoken to many people newly diagnosed this month. The first message we often share is simple: take a breath. Parkinson’s is a journey, and there is time to build your knowledge and your support team.
Early steps include connecting with a movement disorder neurologist, learning about treatment options, and reaching out for support. You don’t need to navigate it alone. Our InfoLine team can help you understand what comes next and assist you in building your care team with confidence.
3. Sweating, Temperature Control & Electricity Rebates
Changes in temperature regulation and excessive sweating are common in Parkinson’s. Summer heat can make symptoms feel worse and increase fatigue. Staying hydrated, dressing in layers, and using cooling strategies at home can help.
For those needing increased air conditioning or cooling support, you may be eligible for electricity rebates or concessions. Our InfoLine team can guide you to the right state-based programs and help you understand what supports are available.
4. Denial, Sadness and Grief
We’ve had important conversations this month about the emotional impact of Parkinson’s. Sometimes people living with Parkinson’s, or their carers, can feel stuck in denial, sadness, or grief. These feelings are normal and part of adjusting to change.
It’s okay to acknowledge that Parkinson’s brings loss as well as change. Talking to someone outside your immediate family can help. Our counsellors provide support at no cost, and the InfoLine can connect you to the right counsellor when you’re ready.
5. My Aged Care – Register Early
A common theme continues into the new year: don’t wait until you’re struggling to register with My Aged Care. The assessment process can take time, and having services approved before you urgently need them provides peace of mind.
You can apply online via the My Aged Care portal or call directly to begin the process. If you’re unsure about eligibility or how to start, our InfoLine team is here to help guide you through the steps.
A new year often brings reflection and a reset. If any of these topics resonate with you, remember our InfoLine team is here to support you as you reconnect with routines, services, and the supports that help you live well.
