Take 5 August / September

A monthly review of the top five issues raised in calls to the Parkinson’s NSW InfoLine team (call (02) 8051 1900).    

1. What to Do When You First Receive Your DiagnosisReceiving a Parkinson’s diagnosis can feel overwhelming, but taking early steps can make a big difference in managing your health and wellbeing. One of the most important things you can do is see a Movement Disorder Neurologist. These specialists have advanced training and experience in Parkinson’s, which means they can provide a more accurate diagnosis, tailored treatment plans, and access to the latest therapies.Parkinson’s NSW is here to guide you from day one, helping you understand your options, connect with support services, and build a strong care network. Our InfoLine is a great first step for information and reassurance.
2. Sialorrhea (Drooling)Drooling is a common and sometimes embarrassing symptom of Parkinson’s, but it can be managed. It’s usually caused by slower swallowing rather than producing too much saliva. Small changes can make a big difference:
   • Practice swallowing techniques taught by a speech therapist
   • Sit upright and slightly tilt your head forward to help with saliva control
   • Carry tissues or a discreet handkerchief for comfort
   • Speak to your neurologist about treatment options that can reduce drooling

   Our InfoLine team can connect you with experienced speech therapists and practical resources to help you manage this symptom with confidence.

3. Communicating with Aged Care Staff and Accessing Services at HomeWhether you’re receiving support in a residential setting or through services at home, having open and respectful communication with providers helps ensure you get the care you need.

   Tips for navigating aged care services:

   • Keep a written list of your needs and questions for discussions with providers
   • Bring a support person to appointments or care meetings
   • If you’re not satisfied with your service, you can change providers at any time

    Contact Parkinson’s NSW for advice on planning and choosing services that fit your goals.

4. Chronic Pain – Recognising Rigidity and Stiffness as PainChronic pain is common in Parkinson’s but often overlooked because muscle rigidity and stiffness may not be described as traditional pain. These symptoms can significantly affect mobility, sleep, and emotional wellbeing.

   Managing pain involves a combination of approaches:

   • Physiotherapy and gentle stretching exercises to maintain flexibility
   • Tailored exercise programs designed for Parkinson’s to reduce muscle tightness
   • Medication adjustments by your neurologist to ease discomfort
   • Pain management specialists who understand Parkinson’s and can suggest additional therapies

   Acknowledging this pain is the first step in getting effective support. Our InfoLine can connect you with physiotherapists, specialists, and programs that can help reduce pain and improve quality of life.

5. Preparing for Your Movement Disorder Neurologist AppointmentMaking the most of each visit to your neurologist ensures you receive the best care. Preparing ahead can help you feel confident and supported:
   • Keep a symptom diary to track changes and medication effects
   • Bring a support person who can help ask questions and take notes
   • Prepare a list of questions such as:
     • Are my medications still the best fit for me?
     • Are there ways to manage side effects?
     • Am I ready to explore advanced therapies like DBS?
     • What referrals can support my speech, mobility, or mental wellbeing?

   Being proactive during appointments helps your neurologist create a treatment plan that supports your best quality of life.

For information or personalised guidance on any of these topics, please contact the Parkinson’s NSW InfoLine on (02) 8051 1900.
We’re here to support you every step of the way.