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Take part in research

Take part in research

Research into Parkinson’s continues to be on the rise in Australia and internationally.

Taking part in a research project may result in a better understanding of , or better treatment or a potential cure for Parkinson’s.  In some cases, research projects may provide access to new interventions before they are widely available.

Below are current research projects looking for participants

Insights into the experience of pain in Parkinson's Disease

Volunteers with Parkinson’s disease are required for a study looking at pain in people with Parkinson’s disease. The study aims to describe the primary ‘drivers’ (i.e. different characteristics) of the pain experience in people with Parkinson’s disease and ongoing pain. Understanding the magnitude of each pain ‘driver’ will help guide a more individualised approach to pain management and improve quality of life. The study involves completing an anonymous survey about the different ‘drivers’ of pain.

The expected time to complete the survey is 30 – 40 minutes.
To take part in the research you must:
• Be diagnosed with Parkinson’s disease
• Regularly experience significant pain (i.e. > 3/10 pain severity (on a scale from 0 to 10, where 0 is no pain and 10 is extreme pain) on more than 2 days per week in the prior 3 months)

This study is being conducted by a team of researchers from the University of Sydney, led by Dr Natalie Allen. Vanessa Nguy is conducting this study as the basis for the degree of Doctor of Philosophy at the University of Sydney.
The survey can be completed online or you may request a paper copy. If you would like to complete an online survey please go to https://sydney.au1.qualtrics.com/jfe/form/SV_5C4mz821U1RMvKS

If you would like to request a paper survey or have further questions, please contact:
Miss Vanessa Nguy | Ph: 0411673561 | Email: vanessa.nguy@sydney.edu.au

Parkinson's Stepping Study - NeuRA

Neuroscience Research Australia (NeuRA) and The University of New South Wales are looking for volunteers to take part in the Parkinson’s stepping study.

The aim is to improve voluntary and reactive stepping in people with Parkinson’s , all whilst playing enjoyable games in your own home and attending 3 slips and trips training sessions in NeuRA’s lab (Sydney).

It is hoped the stepping training program done at home and at NeuRA will result in reducing fall risk in people living with Parkinson’s.

Would the research project be a good fit for me?

  • Have been diagnosed with Parkinson’s disease (mild to moderate stage of the disease)
  • Aged 40 years or older
  • Living independently in the community or retirement village
  • Able to communicate in English language
  • Do not have a diagnosis of other neurological and/or cognitive impairments, atypical Parkinsonism
  • No recent history (< 6months) of deep-brain stimulation surgery
  • Able to walk 30 metres unassisted
  • Have had less than 20 falls in the past three months
  • Being stable on anti-Parkinson medications for >= 1 month

Find out more and register to take part

Download the flyer

Contact information:

Name: Paulo Pelicioni
Email: p.pelicioni@neura.edu.au
Phone: 02 9399 1024
Website: www.neura.edu.au

 

THE INTEGRATE PROGRAM

the Integrate program: a program designed to improve the mobility of people with Parkinson’s

Parkinson’s NSW awarded grants totalling $300,000 to four prominent researchers at the Support Group Conference Annual Dinner in October 2018.

Dr Natalie Allen, Senior Lecturer – Discipline of Physiotherapy, Faculty of Health Sciences at the University of Sydney was awarded one of the $100,000 Parkinson’s NSW research grants and is now recruiting volunteers.

The Integrate program is delivered in participant’s homes by physiotherapists and occupational therapists, and runs for 6 months. It includes three components: behavioural modification, environmental modification and exercise.

You may be eligible to participate if you have Parkinson’s disease and:

  • have fallen at least twice in the last 6 months,
  • are able to walk at least 10 metres on your own (with or without a walking aid)
  • do not have any other neurological problems (eg stroke) or uncontrolled health conditions (eg angina)

This study is being conducted by a team of researchers from the University of Sydney, and Neuroscience Research Australia, led by Dr Natalie Allen. All assessments and intervention will be carried out in participant’s homes.

Download the flyer

Contact information:

Name Dr Natalie Allen
Phone 0468 322 724
Email natalie.allen@sydney.edu.au

 

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