Survey of cannabis and related substance use in the Parkinson’s population and its impact on Parkinson’s symptoms.
University of Sydney
What it is:
An anonymous research study on the use of cannabis or cannabis related substances for managing symptoms of people living with Parkinson’s – both motor and non-motor symptoms.
Who can participate:
Australian residents over the age of 18 with a formal Parkinson’s diagnosis, and who have tried cannabis or cannabis related substances for symptom management.
What participation involves:
Completing a 10-minute online survey. The survey will check eligibility, seek consent for participation, and ask questions about the impact of cannabis on Parkinson’s symptoms. It will also include questions on your Parkinson’s history, medication taken and your motor and non-motor symptoms. No identifying data such as name or email address will be gathered.
How to participate:
Visit: https://redcap.sydney.edu.au/surveys/?s=47YMFR4E98XNL38J
For more information:
Email Sarah Cleophas at scle0647@sydney.edu.au
Australian Parkinson’s Pain Study (APPS)
University of South Australia
What it is:
An investigation of the characteristics of pain in Parkinson’s. This will enable the researchers to develop a comprehensive profile of Parkinson’s-related pain, a deeper understanding of the needs of people living with pain due to Parkinson’s, and patient-centred recommendations on the provision of pain care services.
Who can participate:
People who have been diagnosed with Parkinson’s and have experienced pain symptoms in the past month.
What participation involves:
Completing an online survey.
How to participate:
Visit: www.australianparkinsonspainstudy.com.au
For more information:
Email Anthony Mezzini at anthony.mezzini@mymail.unisa.edu.au
Neuropsychological Assessment in Parkinson’s Disease
University of Queensland
What it is:
Researchers are working to improve neuropsychological assessments for early and more effective diagnosis of dementia in people living with Parkinson’s.
Who can participate:
People living with Parkinson’s, or their family care partners, who have undergone a neuropsychological or cognitive assessment – regardless of what the outcome was.
What participation involves:
Three options – participating in focus groups over Zoom teleconferencing, questionnaires completed online, or surveys over Zoom.
How to participate:
Visit: https://clinical-research.centre.uq.edu.au/pdcognicare
For more information:
Email Dr. Daniel Bailey at daniel.bailey@uq.edu.au
For other research participation opportunities visit this page parkinsonsnsw.org.au/take-part-in-research/
