Parkinson’s NSW research presented at World Parkinson Congress

Research by Parkinson’s NSW, Charles Sturt University and the Mid North Coast Local Health District has been recognised with an invitation to present at the prestigious 5th World Parkinson’s Congress in Kyoto, Japan, in June.

Parkinson’s NSW nurse Vince Carroll and Assoc Prof Rachel Rossiter

“The research project aimed to evaluate the potential benefits of placing more specialist Parkinson’s nurses in regional areas of need. It also assessed the potential to achieve significant savings in the NSW health budget while improving quality of life for people living with Parkinson’s,” said Associate Professor Rachel Rossiter of the School of Nursing, Midwifery and Indigenous Health of Charles Sturt University and leader of the research team.

The first phase of the project was a literature review which identified the largest costs to Government and individuals as acute care and residential aged care expenses, and indirect costs from lost productivity.

In the first component of the second phase, the research team interviewed specialist Parkinson’s nurses, consumers of the specialist nursing services, and other health professionals in the two areas where a specialist Parkinson’s nurse was already in place – Coffs Harbour covering the Coffs Harbour, Bellingen and Nambucca Local Government Areas (LGAs) and Nowra covering the Kiama and Shoalhaven LGAs.

Consumers and carers at both sites were unanimous in describing the positive impact of the specialist Parkinson’s nurse position.

“Approximately 25 percent of people in NSW live outside cities however 93 percent of neurologists are based in major cities. As a result, access to specialist services for people with Parkinson’s living in rural and regional Australia is extremely limited,” said Jo-Anne Reeves, CEO of Parkinson’s NSW.

Research evidence points to the benefits of early intervention and self-management strategies in reducing the burden of disease and caregiver stress. Specialised Parkinson’s nurses can support early intervention and self-management for people living with this disease.

The research also identified enhanced effectiveness when the role is situated within the NSW public health system.

The cost effectiveness of a Parkinson’s Specialist Nurse position in rural and regional Australia

The second component of phase two examined the cost effectiveness of the specialist Parkinson’s nurse working in the Coffs Harbour, Bellingen and Nambucca LGAs. The services provided under a community-based specialist Parkinson’s nurse model embedded within NSW public health service were found to contribute to reducing hospital length of stay and health care costs for people with a diagnosis of Parkinson’s disease who were admitted to acute care services.

There are currently three specialist Parkinson’s nurses working in regional NSW.

These nurses are located in Coffs Harbour, covering the Coffs Harbour, Bellingen and Nambucca Local Government Areas (LGAs); Port Macquarie covering the Port Macquarie, Kempsey and Wauchope LGAs; and Nowra covering the Kiama and Shoalhaven LGAs.

The goal of Parkinson’s NSW is to raise enough money to provide another five specialist Parkinson’s nurses in regional NSW communities by 2022.

 

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