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Caring for our carers

Caring for our carers If you are caring for a loved one who is living with Parkinson’s, then the Carers NSW web site is well worth a visit. Among other goals, Carers NSW aims to actively promote carer recognition and support, and support carers to navigate a changing service landscape.…


Tips on symptom and medication management

InfoLine tips on symptom and medication management The Parkinson’s InfoLine is staffed by Parkinson’s Registered Nurses who have more than 70 years of experience between them. One such Nurse is Cathy Melton who recently joined a Zoom meeting with Support Group participants. She discussed symptom and medication management and we…


How can I get up from the floor?

How can I get up from the floor? Have you ever had a fall or tripped and found yourself on the floor? It is important that when getting back up from the floor that you do so slowly and carefully. It is also good to let someone know that you…


Meet & Greet Lismore Support Group

Meet and Greet Lismore Support Group The Lismore Support Group is led by Di Lymbury – a transplant six years ago from the Hunter Valley-Newcastle Support Group. The Lismore Group had been led by a local Occupational Therapist, Anthony Zuill. However, the Group had lapsed by the time Di arrived.…


Great way to keep in contact with each other during COVID-19 and beyond

Great way to keep in contact with each other during COVID-19 and beyond Earlier this month the Support Group Leaders gathered for a Zoom meeting to share ideas on how to keep connected with their participants during COVID-19. Many ideas were shared, and people had the opportunity to talk about…


Support Groups increasingly adopt Zoom

Support Groups increasingly adopt Zoom More than 21 Parkinson’s NSW Support Groups are now meeting regularly via the video-chat application called Zoom. Zoom is free and can be used on any computer or smartphone. [caption id="attachment_5629" align="alignleft" width="338"] Bathurst Support Group Zoom meeting[/caption] Support Group Coordinator Felicity Jones helps some…


Tips on preparing for a Neurologist appointment

Tips on preparing for a Neurologist appointment Most people living with Parkinson’s see their neurologist every three to six months initially, then every six to 12 months. However, if you are experiencing problems with your Parkinson’s or its treatment, more frequent visits may be required. As you are no doubt…


People living with Parkinson’s leave work five years after diagnosis

People living with Parkinson’s leave work five years after diagnosis A Europe-wide study into the impact of Parkinson’s on employment highlights how quickly people with the condition are forced to leave work after diagnosis – and why. The study found that on average, people living with Parkinson’s leave work five…


What makes a good Support Group Leader? And why volunteer for the role?

What makes a good Support Group Leader? And why volunteer for the role? Becoming part of a Support Group Leadership Team (Committee) can be both challenging and rewarding. If, in your Group, the Leadership Team gets stuck with doing all the work… then something is wrong. The role of the…


Margaret Scott: Building sustainability through fundraising

Margaret Scott: Building sustainability through fundraising Margaret Scott is the Vice President of the Board of Parkinson’s NSW – and a fundraiser through and through. Over more than 30 years she has worked on all aspects of fundraising for disability and healthcare not-for-profits – from administering databases to organising appeals,…


Coping with anxiety due to change

Coping with anxiety due to change Many of us are slowly starting to emerge into social situations after months of various degrees of isolation imposed as a healthcare measure. Retail stores, cafes and restaurants are beginning to re-open, gyms are permitted to hold exercise classes again, and personal care services…


Parkinson’s NSW nurses drive education benefiting people living with Parkinson’s

Parkinson’s NSW nurses drive education benefiting people living with Parkinson’s Clinical Nurse Consultant Vince Carroll – who is based in the Mid North Coast Local Health District – and Sydney-based Parkinson’s Registered Nurse Julie Austin recently participated in a collaborative project with the Health and Education Training Institute (HETI) and…


Seniors Rights Service can help resolve Aged Care issues

Seniors Rights Service can help resolve Aged Care issues Some people in our community have contacted Parkinson’s NSW to talk about issues they have been having with their Aged Care Service Providers. In some cases, they have not been getting the support they are entitled to through their Home Care…


Want to join research into rural and regional Support Groups?

Want to join research into rural and regional Support Groups? Parkinson’s NSW Clinical Nurse Consultant Vince Carroll – who is based in the Mid North Coast Local Health District – is a PhD candidate at Charles Sturt University. He is conducting research to explore the models of Parkinson’s Support Group…


Don’t forget your Emergency Card

Don’t forget your Emergency Card I have Parkinson’s and Carer Emergency Cards are available from Parkinson’s NSW. Download Carer Emergency Contact Card Download I have Parkinson's Contact Card or call the InfoLine: 1800 644 1898 Complete the details on your card, then carry it with you always.


Shout or you’ll be without!

Shout or you’ll be without! Your vocal muscles need exercise, just like any other group of muscles in your body. Being able to communicate with others is essential to a happy and healthy life. However, Parkinson’s makes all avenues of communication tough. It affects the volume, tone, rhythm and speed…


Identifying and preparing future Support Group Leaders

Identifying and preparing future Support Group Leaders At this time of year Support Groups are planning meetings to select their Leadership Team (sometimes called the Committee). Two questions frequently come up: How do we identify and prepare future Leaders of our Group? What do I do if I need to…


Try free daily Laughter Yoga via Zoom

Try free daily Laughter Yoga via Zoom Daily Laughter Yoga sessions are now available FREE via Zoom videoconferencing. This is an initiative of Laughter Yoga Teachers Australia wide, coordinated by Laughter Yoga Australia. One session per day is scheduled over each week at different times of the day in order…


Meet & Greet – Bathurst Support Group

Meet & Greet - Bathurst Support Group The Bathurst Support Group has been in operation for well over 20 years. [caption id="attachment_5629" align="alignnone" width="439"] Bathurst Support Group Zoom Meeting[/caption] The date of its founding could not be established, but the Group was first started by the Aged Care team in…


COVID-19 infections in people living with Parkinson’s

COVID-19 infections in people living with Parkinson’s A research paper accepted for publication in the journal Movement Disorders suggests that people who have lived with Parkinson’s for an average of 12.7 years may be more susceptible to infection with COVID-19 (Coronavirus). Individuals with longer duration of Parkinson’s who become infected…


Di Trestrail of Armidale awarded OAM

Di Trestrail of Armidale awarded OAM Diane ‘Di’ Trestrail of Armidale was awarded an Order of Australia Medal (OAM) for service to people living with Parkinson’s on this year’s Queen’s Birthday Honours List. “I was honoured to receive an email asking me if I would accept this award,” said Di.…


Phone service helps navigate the Aged Care system

Phone service helps navigate the Aged Care system. Council on the Ageing NSW (COTA) has launched a new telephone service to guide people through the complexities of the Aged Care system. The new service can explain: How the Aged Care system works How to organise home or residential care Your…


No-Escape Room: Parkinson’s NSW Launches Awareness Campaign

No-Escape Room: Parkinson's NSW Launches Awareness Campaign No-Escape Room allows people to step into the shoes of people living with Parkinson’s and helps to shift the common misconception that it is a disease of the elderly. This interactive, experientially led campaign has been specially designed to allow Australians to understand…


7 ways to help your loved one with Parkinson’s

7 ways to help your loved one with Parkinson’s. It goes without saying that you want to do your best to help your loved one with Parkinson’s. But what does that mean in a practical sense? For most of us who aren’t natural-born caregivers, we need some time to learn…

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