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Media Centre

My [Parkinson’s] Life

My [Parkinson's] Life Never quit, even in difficult times... Sandra Elms Sandra Elms was born in England but has spent several periods of her life in Australia – firstly as a child growing up in Perth with her parents and sister, then as an 18-year-old travelling around with a friend…


Online meetings for support groups

ONLINE meetings and information sessions November/December 2020 Healthy bladder and bowel Date: Wednesday, 25 November at 10.30am Presented by: Continence Foundation Link: https://us02web.zoom.us/j/84716609760?pwd=RmNDQ050L3loU3FIakw2aXFlS3Vodz09 Meeting ID: 847 1660 9760 Passcode: 934932 Join on your mobile by calling: 02 8015 6011 Who is this for: Anyone Navigating My Aged Care Packages Date: Thursday 3…


Virtual Dance for Parkinson’s classes in Mandarin

Virtual Dance for Parkinson’s classes in Mandarin To expand the access and inclusivity of Dance for Parkinson's Australia (DPA) classes, virtual dance classes for the Chinese community are now being piloted. These free classes will be taught in Mandarin by an experienced Dance for Parkinson's teacher. Classes will be seated…


Voice changes for early Parkinson’s diagnosis?

Voice changes for early Parkinson’s diagnosis? Researchers at Monash University in Melbourne are studying the vocal cords of people with Parkinson’s to determine whether measuring voice changes – an early sign of the condition –could improve early diagnosis. As part of the trial, 31 people with different severities of Parkinson’s…


Exercising in different climates

Research into exercise in different climates Researchers at James Cook University (JCU) and La Trobe University conducting research with ambulatory patients who are performing twice-weekly exercises that  include aerobics plus strengthening or flexibility training. Research has found that Parkinson’s patients who exercise for at least 2.5 hours weekly also experience a slower decline in their…


Driving and Parkinson’s

Advice on driving with Parkinson’s Surrendering your driver’s license is like surrendering your independence – but unfortunately that time must come at some point in your Parkinson’s journey. It is important to remember that Parkinson’s can affect your ability to self-evaluate. Therefore, it is a good starting point to discuss…


COTA hosts Navigating Home Care Packages Zoom

COTA hosts Navigating Home Care Packages Zoom On 4 November Mary Bills of the Council on the Ageing (COTA) hosted a Zoom meeting for Parkinson’s NSW Support Group participants about Navigating Home Care Packages. Mary is Project Officer – Aged Care Navigators Trial at COTA. Her Zoom presentation was attended…


Port Macquarie Carer Support Group pottery class

Port Macquarie Parkinson’s Carer Support Group Pottery Class written by Sue Faulkner Giving something new a try and having some fun.  This was the idea behind this month’s activity.  A small group from the Port Macquarie Parkinson’s Carer Support Group took themselves out of their comfort zone and look what…


Useful Advocacy Organisations

By definition advocacy is an activity by an individual or group that aims to influence decisions within political, economic, and social institutions.  Advocacy includes activities and publications to influence public policy, laws and budgets by using facts, their relationships, the media, and messaging to educate government officials and the public.* Useful advocacy organisations Australian Government Aged Care Quality and…


Your physical & mental wellbeing

Staying physically & mentally healthy As humans we have strong physical and psychological needs. With the current Coronavirus (COVID-19) situation, these needs can be harder to meet.  prioritising your mental and physical health and wellbeing has never been more important than now. According to the Self-Determination Theory, we have three psychological…


Collaboration on Nurse Specialist program

Parkinson’s NSW and Charles Sturt University collaborate on Nurse Specialist program for western NSW Charles Sturt University is collaborating with Parkinson’s NSW and the Western NSW Primary Health Network (WNSW PHN) on a four-year Movement Disorder Nurse Specialist Pilot Program to assist people living with neurological conditions in western NSW…


Parkinson’s and REM sleep

Parkinson’s and REM Sleep Behaviour Disorder During Rapid Eye Movement (REM) sleep cycles, most people are effectively paralysed, so they don’t act out dreams. However, a third of all people with Parkinson’s disease also have REM Sleep Behaviour Disorder – a condition that removes sleep paralysis and can cause people…


Joan saves her voice

Joan saves her voice! At 65 Joan Norrie has been living with Parkinson’s for more than twenty years. The disease came upon her as a busy mum; she juggled work, family, and a complex medication regime until ultimately electing to undergo Deep Brain Stimulation (DBS) surgery in 2013. The positive…


Positive responses to first Client Satisfaction Survey

Positive responses to first Client Satisfaction Survey Parkinson’s NSW recently engaged an independent organisation to conduct the first of a series of regular surveys of the satisfaction levels of people receiving Parkinson’s NSW services and support. The independent provider managed the survey process, undertook a comprehensive analysis of the data…


Parkinson’s Nurses in action

Parkinson's Specialist nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s.  These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Balance Exercises

Simple Balance exercises to do at home  Here are some simple exercises you can do at home, to help with muscle strengthening in order to help prevent falls. Balance exercises Single Leg Balance Stand near a chair or stable object.  Hold with both hands. When steady take one hand off,…


Aligning Science Across Parkinson’s

Aligning Science Across Parkinson’s  New research into the genetic basis of Parkinson’s will be led by the University of Sydney’s Brain and Mind Centre, thanks to a AU$12.5m grant administered by the Aligning Science Across Parkinson’s (ASAP) initiative. “The outcomes of this research promise to provide new insights into the…


Free Speech Pathology

Free Speech Pathology in Sydney Who runs the group? UTS Speech Pathology students. They are supervised by a qualified Speech Pathologist. When? Appointments available on Monday, Tuesday, Thursday and Friday. Where? The UTS Clinic is in Sydney at 100 Broadway, Ultimo. We can also see people online via Telepractice. How…


Newly Diagnosed Parkinson’s Packs

Newly Diagnosed Pack now available faster online Newly diagnosed with Parkinson’s. Need information asap? Parkinson’s NSW can help with that. [caption id="attachment_5990" align="alignnone" width="480"] Call Parkinson's NSW InfoLine 1800 644 189[/caption] Now that Australia Post deliveries are less frequent – and even unreliable in some areas – we have developed…


Building your digital skills

Tech-savvy, or needing a bit of help? Leep is a not-for-profit organisation that works to enable people to use technology in an increasingly digital world. Its focus is on building digital skills and confidence, and its goal is to narrow the digital divide and reduce social and economic exclusion. The…


Four Happy Hormones

Four Happy Hormones Why do certain people and experiences make us feel calm, happy, or even joyful? One of the key elements for this is that our positive connections and experiences of awe and wonder actually create a chemical reaction in our brain.  This is via chemical messengers in our…


Your physical & mental wellbeing

Staying physically & mentally healthy As humans we have strong physical and psychological needs. With the current Coronavirus (COVID-19) situation, these needs can be harder to meet.  During the COVID-19 pandemic, prioritising mental health and wellbeing has been more important than ever. This World Mental Health Day – October 10 –…


Respite is Necessary for Carers

Respite is necessary for carers Respite is necessary for carers in order for them to maintain mental and physical health, and to remain effective in their caring role. [caption id="attachment_5933" align="alignnone" width="601"] Respite simply means taking a break from being a carer. There are many different types of respite support…


Carers Week 11-17 October 2020

To celebrate carers and recognise the significant contribution they make each and every day, Carers NSW is hosting a range of online wellbeing workshops and webinars during National Carers Week from 11 to 17 October 2020. These replace the activities they would normally have organised for Carers Week due to…

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