A monthly review of the top five issues raised in calls to the Parkinson’s NSW InfoLine team (call 1800 727 567).
- Pain in Parkinson’s – You don’t have to put up with it
Pain is one of the most common but often overlooked symptoms of Parkinson’s. It can be caused by rigidity, muscle cramps, dystonia, poor posture, or changes in movement patterns. Many people assume pain is simply something they have to accept, but support is available.
Managing pain often requires a holistic approach. This may include stretching, physiotherapy, exercise, heat or cold therapy, medication reviews, and in some cases referral to a pain management specialist. If pain is affecting your quality of life, it’s important to discuss it with your medical team rather than trying to manage it alone.
- Panic Attacks – Understanding and Managing Them
Panic attacks can be frightening and may feel similar to some Parkinson’s symptoms, including shaking, sweating, dizziness, or a racing heart. The good news is that they are common and support is available.
Strategies such as slow breathing, grounding exercises, mindfulness, and identifying triggers can help manage symptoms. If anxiety is becoming a regular concern, speak with your GP about a Mental Health Care Plan, which may provide access to subsidised psychological support. Parkinson’s NSW also offers counselling services and can help connect you with additional supports.
- Support Groups – What are they and who are they for?
Many callers ask what Parkinson’s support groups actually involve. Support groups provide an opportunity to connect with others who understand the challenges of living with Parkinson’s. They offer friendship, shared experiences, practical tips, guest speakers, and a sense of community.
Groups are available for people living with Parkinson’s, carers, and those newly diagnosed. Many people tell us that simply talking to others who “get it” helps reduce feelings of isolation and builds confidence in managing the condition.
- Red Light Therapy – What do we know?
Interest in red light therapy continues to grow, with many people asking whether it can help Parkinson’s symptoms. While research is ongoing more high-quality studies are needed before clear recommendations can be made.
If you’re considering red light therapy, it’s important to discuss it with your healthcare team and view it as a complementary therapy rather than a replacement for prescribed treatments. Our InfoLine team can provide information about current evidence and help you make informed decisions.
- Hydration – Are you drinking enough?
Staying hydrated is particularly important for people living with Parkinson’s. Dehydration can contribute to constipation, fatigue, dizziness, low blood pressure, confusion, and an increased risk of falls.
Many people find it helpful to keep a water bottle nearby, set reminders throughout the day, or link drinking water with regular activities such as taking medication. If you’re experiencing symptoms that may be related to dehydration, speak with your medical team. Small changes in fluid intake can sometimes make a significant difference to daily wellbeing.
If any of these topics sound familiar, our Parkinson’s NSW InfoLine team is here to provide further information, support, and referrals to help you live well with Parkinson’s.
