A monthly review of the top five issues raised in calls to the Parkinson’s NSW InfoLine team (call 1800 727 567).
1.Parkinson’s Plus / Atypical Parkinsonism
We’ve seen an increase in enquiries about Parkinson’s Plus syndromes, also known as atypical Parkinsonism. These conditions can share symptoms with Parkinson’s but often progress differently and may respond differently to medication. Receiving this type of diagnosis can feel overwhelming and confusing for individuals and families.
It’s important to stay connected with your neurologist and care team, ask questions, and seek support early. Our InfoLine can help explain terminology, connect you with reliable information, and guide you toward appropriate supports and services.
2. Post-Prandial Hypotension (Blood Pressure Drops After Eating)
Some callers have been experiencing dizziness, weakness, fatigue, or feeling faint after meals. This may be related to post-prandial hypotension, which is a drop in blood pressure after eating and can be more common in people living with Parkinson’s due to changes in the autonomic nervous system.
There are some practical strategies that may help manage symptoms, including:
- Eating smaller meals more frequently rather than large meals
- Reducing very high carbohydrate meals where possible
- Drinking water before meals
- Avoiding standing up too quickly after eating
- Remaining seated or resting for a short time after meals
- Staying well hydrated throughout the day
Because these symptoms can increase the risk of falls, it’s important to mention them to your medical team. Treatment options and medication adjustments may help. If you’d like more information or support around managing blood pressure changes in Parkinson’s, our InfoLine team is here to help.
3. Stress Around “Invisible” Symptoms
Many people have shared how difficult it can be when symptoms aren’t obvious to others. Fatigue, pain, anxiety, cognitive changes, dizziness, and other non-visible symptoms can be incredibly challenging, especially when family and friends can’t easily see them.
Talking openly with trusted people about how Parkinson’s affects you day-to-day can help to build understanding and support. Some people find it helpful to share information resources or attend appointments with loved ones so they can better understand the condition. Our counsellors and InfoLine team are also here to support both individuals and family members through these conversations.
4. Gastric Reflux and Slowed Digestion
Parkinson’s can slow down the digestive system, sometimes leading to reflux, bloating, nausea, or feeling full quickly. These symptoms can also impact how well Parkinson’s medications are absorbed.
If digestive symptoms are becoming more noticeable, it’s important to speak with your GP, neurologist, or medical team. Treatment options, dietary adjustments, and medication reviews may help improve comfort and symptom control. Our InfoLine can also help connect you with dietitians or other appropriate supports.
5. Hallucinations and Delusions
We’ve also had an increase in conversations around hallucinations and delusions. These symptoms can be distressing for both the person experiencing them and their loved ones, but they are more common in Parkinson’s than many people realise.
Hallucinations and delusions should always be discussed with your medical team, as they can sometimes be linked to medication changes, infections, sleep issues, or progression of symptoms. Early support and treatment can make a significant difference. If you’re unsure where to start, our InfoLine team can help guide you toward the right support.
