A monthly review of the top five issues raised in calls to the Parkinson’s NSW InfoLine team (call 1800 727 567).
1. Falls and Freezing of Gait
Falls are one of the most common concerns we hear about on the InfoLine. They can happen for many reasons in Parkinson’s, changes in balance, muscle stiffness, slower reaction times, or freezing of gait, where the feet feel ‘stuck’ to the floor when trying to move.
Preventing falls often involves a combination of strategies such as reviewing medications, working with a physiotherapist on balance and gait training, making small changes to the home environment, and learning techniques to manage freezing episodes.
If falls are becoming more frequent, it’s important to mention this to your neurologist or health team so adjustments can be made.
2. Continuous Therapies and the 5-2-1 Rule
We’ve had a number of calls asking about advanced or continuous therapies and when they might be appropriate. A helpful guide sometimes used by clinicians is the 5-2-1 rule:
- Taking 5 or more doses of levodopa per day
- Experiencing 2 or more hours of ‘off’ time daily
- Having 1 or more hours of troublesome dyskinesia
This rule doesn’t replace a medical assessment, but it can signal that it may be time to discuss advanced treatment options with your neurologist.
3. Medication Timing – ‘On Time, Every Time’
One of the most common issues we hear about is medication timing. Parkinson’s medications work best when taken on time, every time, as prescribed by your doctor.
Delays or missed doses can lead to increased symptoms, reduced mobility, and more ‘off’ periods.
Using phone alarms, pill boxes, or written schedules can help keep medication timing consistent. If you’re finding it difficult to keep up with medication schedules, the InfoLine team can talk through practical strategies.
4. Allied Health Support
Many people are surprised by how important allied health professionals can be in managing Parkinson’s. Physiotherapists, speech pathologists, occupational therapists, dietitians, and exercise physiologists all play a role in maintaining mobility, communication, swallowing, and overall wellbeing.
Working with professionals who understand Parkinson’s can make a big difference in maintaining independence and quality of life. If you’re unsure which services might be helpful, the InfoLine can help point you in the right direction.
5. Apathy – When Motivation Disappears
Apathy can be one of the more difficult symptoms of Parkinson’s. It may look like loss of motivation, reduced interest in activities, or difficulty starting tasks. Because it can feel like “just being tired” or “not trying hard enough,” people sometimes delay seeking help.
It’s important to recognise that apathy is a symptom of Parkinson’s and support is available. Talking with your neurologist, GP, or a counsellor can help identify strategies to manage it. Sometimes simply reaching out and starting the conversation is the hardest step.
If any of these topics sound familiar, remember our InfoLine team is here to help you find information, support, and the services that can make living with Parkinson’s easier.
