A monthly review of the top five issues raised in calls to the Parkinson’s NSW InfoLine team (call 1800 727 567).
- New Subcutaneous Advanced Therapy
There’s been a lot of excitement about the new subcutaneous advanced therapy now being introduced in Australia. It’s understandable, any new treatment offers hope. However, it’s important to know that this therapy isn’t suitable for everyone and isn’t yet widely available. It’s not a “wonder drug,” but rather another option that may be appropriate for certain people under specialist care.
If you’re interested in learning more, our InfoLine team can help you understand how the therapy works, who it may suit, and what steps to take if you’d like to discuss it with your neurologist.
- Slip, Slop, Slap
As we head into summer, it’s a good reminder that people living with Parkinson’s, particularly those on certain medications, can have a slightly higher risk of melanoma. Getting morning sunlight is still important for bone health and mood, but balance is key. Slip on protective clothing, slop on sunscreen, slap on a hat, seek shade, and slide on sunglasses.
If you’re unsure about how your medications might affect your skin or vitamin D levels, our InfoLine team can help guide you to reliable information and support.
- Menopause and Parkinson’s, When Symptoms Overlap
For women, navigating menopause alongside Parkinson’s can be especially tricky. Hot flushes, fatigue, sleep changes, and mood shifts can feel like Parkinson’s symptoms, and vice versa, making it hard to know what’s causing what.
Keeping a symptom diary and talking with your GP or neurologist about changes can really help. Partners and families can also play a key role by listening, being patient, and helping track patterns. Our InfoLine can share practical ideas and resources for managing both conditions and finding the right specialists.
- My Aged Care – Apply Before You Need It
A common piece of advice we share: don’t wait until you’re struggling to reach out for support. My Aged Care can help with services such as cleaning, transport, respite, and allied health, but applications take time. Setting things up early makes life much easier when your needs change.
If you’re unsure where to start, our InfoLine team can explain the process and help you connect with the right services in your area.
- Panic Attacks and Grounding Techniques
Panic attacks can be unsettling, especially when Parkinson’s symptoms like trembling or breathlessness make them feel worse. Simple grounding strategies, such as slow breathing, focusing on your surroundings, or naming five things you can see, can help calm both body and mind.
For carers or family members, staying calm, speaking gently, and offering reassurance can make a big difference. Our counsellors and InfoLine team can also suggest practical tools and supports for managing anxiety and building confidence.
