Caring for someone living with Parkinson’s can be deeply rewarding but also emotionally and physically draining.

Over time, many carers experience what’s known as empathy burnout or compassion fatigue — a state of emotional and physical exhaustion caused by continually caring for others without enough time to recharge.

Recognising the signs early and taking small steps can make a big difference. Here are some strategies from the Parkinson’s NSW counsellors.

1. Feeling Powerless Over Disease Progression

Watching symptoms worsen despite your best efforts can lead to helplessness and emotional fatigue.
What helps: Acknowledge the burnout. Recognising you’re emotionally exhausted is the first step. It’s not weakness – it’s a natural response to ongoing emotional demands.

2. Emotional Detachment During Difficult Moments

You may respond without emotion during freezing episodes, falls, or hallucinations — feeling numb or disconnected.
What helps: Reach out for support. Talk to a friend, family member, or counsellor. Join a Parkinson’s carer group, either locally or online.

3. Guilt Over Frustration

It’s common to feel frustrated during repetitive or stressful tasks and then feel guilty afterwards.
What helps: Take regular breaks. Use respite care or short time-outs throughout the day (even 10–15 minutes) to reset your emotional energy.

4. Avoiding Interaction

Withdrawing from conversation or emotional closeness can be a sign of overwhelm.
What helps: Reconnect with yourself. Revisit hobbies or interests you’ve set aside — reading, gardening, walking, journaling — to rediscover your sense of self.

5. Losing Personal Identity

Feeling like you’ve become “just a carer” instead of the person you once were.
What helps: Set boundaries. It’s okay to say no to non-urgent requests and to ask others to share responsibilities. Make time just for you.

6. Constant Physical and Mental Exhaustion

Feeling tired even after resting, with sleep disruptions and ongoing vigilance adding to the strain.
What helps: Care for your body. Prioritise rest, nutrition, hydration, and gentle exercise such as stretching, yoga, or walking.

7. Withdrawal from Support Systems

Skipping support groups or believing “no one understands” can deepen isolation.
What helps: Educate yourself and stay connected. Learning more about Parkinson’s and caregiving techniques can increase confidence and reduce stress. Parkinson’s NSW offers information, programs, and carer resources to help.

Support and Resources

If you recognise these signs, you are not alone and support is available.

• Parkinson’s NSW InfoLine and counsellors: 1800 727 567

• Carer Gateway: 1800 422 737

• Lifeline (24/7 emotional support): 13 11 14