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Posts Tagged ‘parkinsons’

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Parkinson’s nurses in action -Judy

PARKINSON’S SPECIALIST NURSES IN ACTION Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s.  These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


My DBS Journey – Sharyn

My DBS Journey - Sharyn Sharyn, aged 70 Had DBS surgery in February 2020  Sharyn has lived in Cooma for 42 years. Back in 2008 she was working in childcare when she began to think she had Parkinson’s. “I suspected I had it because two of my father’s cousins and…


Are we close to a cure for Parkinson’s?

How close are we to a cure for Parkinson’s? Saskia Mair of Parkinson’s Life interviews Sohini Chowdhury, Deputy CEO of the  Michael J Fox Foundation. How close do you think the scientific community is to finding a cure for Parkinson’s? Whenever I say the word ‘cure’, I kind of put…


Voice changes for early Parkinson’s diagnosis?

Voice changes for early Parkinson’s diagnosis? Researchers at Monash University in Melbourne are studying the vocal cords of people with Parkinson’s to determine whether measuring voice changes – an early sign of the condition –could improve early diagnosis. As part of the trial, 31 people with different severities of Parkinson’s…


Exercising in different climates

Research into exercise in different climates Researchers at James Cook University (JCU) and La Trobe University conducting research with ambulatory patients who are performing twice-weekly exercises that  include aerobics plus strengthening or flexibility training. Research has found that Parkinson’s patients who exercise for at least 2.5 hours weekly also experience a slower decline in their…


Driving and Parkinson’s

Advice on driving with Parkinson’s Surrendering your driver’s license is like surrendering your independence – but unfortunately that time must come at some point in your Parkinson’s journey. It is important to remember that Parkinson’s can affect your ability to self-evaluate. Therefore, it is a good starting point to discuss…


Useful Advocacy Organisations

By definition advocacy is an activity by an individual or group that aims to influence decisions within political, economic, and social institutions.  Advocacy includes activities and publications to influence public policy, laws and budgets by using facts, their relationships, the media, and messaging to educate government officials and the public.* Useful advocacy organisations Australian Government Aged Care Quality and…


Parkinson’s and REM sleep

Parkinson’s and REM Sleep Behaviour Disorder During Rapid Eye Movement (REM) sleep cycles, most people are effectively paralysed, so they don’t act out dreams. However, a third of all people with Parkinson’s disease also have REM Sleep Behaviour Disorder – a condition that removes sleep paralysis and can cause people…


Free Speech Pathology

Free Speech Pathology in Sydney Who runs the group? UTS Speech Pathology students. They are supervised by a qualified Speech Pathologist. When? Appointments available on Monday, Tuesday, Thursday and Friday. Where? The UTS Clinic is in Sydney at 100 Broadway, Ultimo. We can also see people online via Telepractice. How…


Newly Diagnosed Parkinson’s Packs

Newly Diagnosed Pack now available faster online Newly diagnosed with Parkinson’s. Need information asap? Parkinson’s NSW can help with that. [caption id="attachment_5990" align="alignnone" width="480"] Call Parkinson's NSW InfoLine 1800 644 189[/caption] Now that Australia Post deliveries are less frequent – and even unreliable in some areas – we have developed…


Getting good sleep and rest

Getting good sleep and rest The physical symptoms of Parkinson’s can sometimes cause sleep disturbances and prevent adequate rest. The restorative effects of sleep can improve health and help people living with Parkinson’s  better manage the disease on a daily basis, so ensuring you get enough quality sleep is essential. The Parkinsons Foundation has…


Parkinson’s medication and daylight savings

Parkinson's medication, sleep and daylight savings The change from Eastern Standard Time to Daylight Saving Time will take place at 2am on Sunday, 4 October. The clock will spring forward 1 hour. And if you're out and about Bunnings Sausage Sizzles resume on weekend commencing October 3 in NSW. We…


COVID-19 and the link to Parkinson’s

COVID-19 and the link to Parkinson's On 23 September 2020, the ABC  published a story online  titled Experts warn coronavirus may cause 'wave' of neurological conditions including Parkinson's disease about Australian research into the potential of COVID-19 to cause longer term damage to the brain, leading to conditions such as Parkinson’s. This…


Tips on preparing for a Neurologist appointment

Tips on preparing for a Neurologist appointment Most people living with Parkinson’s see their neurologist every three to six months initially, then every six to 12 months. However, if you are experiencing problems with your Parkinson’s or its treatment, more frequent visits may be required. As you are no doubt…


People living with Parkinson’s leave work five years after diagnosis

People living with Parkinson’s leave work five years after diagnosis A Europe-wide study into the impact of Parkinson’s on employment highlights how quickly people with the condition are forced to leave work after diagnosis – and why. The study found that on average, people living with Parkinson’s leave work five…


What makes a good Support Group Leader? And why volunteer for the role?

What makes a good Support Group Leader? And why volunteer for the role? Becoming part of a Support Group Leadership Team (Committee) can be both challenging and rewarding. If, in your Group, the Leadership Team gets stuck with doing all the work… then something is wrong. The role of the…


Parkinson’s NSW nurses drive education benefiting people living with Parkinson’s

Parkinson’s NSW nurses drive education benefiting people living with Parkinson’s Clinical Nurse Consultant Vince Carroll – who is based in the Mid North Coast Local Health District – and Sydney-based Parkinson’s Registered Nurse Julie Austin recently participated in a collaborative project with the Health and Education Training Institute (HETI) and…


7 ways to help your loved one with Parkinson’s

7 ways to help your loved one with Parkinson’s. It goes without saying that you want to do your best to help your loved one with Parkinson’s. But what does that mean in a practical sense? For most of us who aren’t natural-born caregivers, we need some time to learn…


Research Participation Opportunity

Research participation opportunity: Genetic factors influencing risk of Parkinson’s. Researchers at QIMR Berghofer Medical Research Institute are seeking participants for an Australian research study that will investigate the genetic factors that influence a person’s risk of Parkinson’s disease. The study is trying to find genetic variants that can help researchers understand, predict, and eventually prevent…


Parkinson’s NSW Support Groups online Community

Parkinson's NSW Support Groups online community. Parkinson’s NSW has an Online Community on Facebook for Support Groups. Anyone can join and benefit from the discussion and sharing. There are currently more than 100 participants in this Community. Join here or search for us on Facebook.


Using electrical energy to unfreeze gait

Using electrical energy to unfreeze gait. Some people with Parkinson’s disease experience freezing of gait every day. Unfortunately, medication that reduces motor symptoms of this disease doesn’t usually help with freezing. At McGill University in Montreal, Canada, PhD student Alexandra Potvin-Desrochers is investigating the connectivity between the regions of the…


World Parkinson’s Congress 2022

World Parkinson Congress (WPC) 2022. The 5th World Parkinson Congress (WPC) was held in Kyoto, Japan, in June 2019. Now planning is underway for the 6th Parkinson Congress to be held in Barcelona, Spain from June 7 to 10, 2022. That sounds like a long time away, but it’s not…


Students connect with seniors to demystify digital world

Students connect with seniors to demystify digital world. The Australian Government’s Office of eSafety is reaching out to high school students to assist in increasing digital literacy for older Australians and building intergenerational relationships. The Be Connected Young Mentors Program was launched in March. eSafety Project Manager Jill McNaught explained…


‘Natural killer’ cells could halt Parkinson’s

‘Natural killer’ cells could halt Parkinson’s. Researchers at the University of Georgia's Regenerative Bioscience Centre have found that ‘natural killer’ white blood cells could guard against the cascade of cellular changes that lead to Parkinson's and help stop its progression. ‘Natural killer’ cells are white blood cells that can kill…

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