Parkinson’s NSW NDIS Nurse Advocate

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Parkinson’s NSW now has a registered nurse devoted to advocating for people with Parkinson’s applying for the National Disability Insurance Scheme (NDIS).

Margi Edmondson is a nurse and nurse educator with more than 35 years of experience – including five at Parkinson’s NSW.

She is available via the InfoLine on 1800 644 189 to provide advice and support on navigating the complexities of the NDIS.

“Anyone under 65 with a diagnosis of Parkinson’s can apply for support from the NDIS,” explained Margi.
“However, given that the role of the NDIS is to provide support not otherwise available through Medicare, applications by people with Parkinson’s can be complex.”

Margi can explain how the NDIS works, who is eligible and how to enrol – then advocate for you throughout your journey toward securing funding.

She has developed tools to support you along the way, including checklists that will guide you through the application process and confirm what supporting documents will be required at each step.

Margi will advise on the clinical assessments you will require – including those from neurologists, speech therapists, and physiotherapists. She can also recommend the appropriate primary and allied health practitioners to consult in your area.

She can also connect you to people with Parkinson’s who have already been through the process and now generously make themselves available to share their
experiences.

“Navigating the NDIS processes can be challenging and frustrating, but it is a journey worth taking to obtain the support you require,” said Margi.

“Even if your application is initially declined it is not the end of the story; there are ways of reapplying or appealing. We’ll be with you all the way.”

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