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Support for Parkinson’s community in State Budget

On 22 June it was announced that the NSW State Budget includes an $8.6 million package to support people living with movement disorders – including Parkinson’s. The funding will start with $1.8 million in 2021-22 with the full amount being spent over four years. The package will fund 15 specialist…


Equine assisted therapy

Can equine-assisted therapy benefit people with Parkinson’s? Researchers from Texas Woman’s University, USA, are investigating how equine-assisted therapy – which involves working with horses to promote wellbeing – can benefit people living with Parkinson’s As part of the five-month study – funded by the non-profit Human Animal Bond Research Institute…


Parkinson’s and Menopause

We need to be having more conversations about menopause By Heather Kennedy I was first diagnosed with Parkinson’s in 2011, at the age of 41. As I approach the menopause, I’ve noticed changes in myself. First of all, I have a lower libido. I just want nothing to do with…


Research: weight, sleep & depression

Weight, sleep, and depression linked to risk of cognitive  problems in Parkinson’s Researchers at the University of Pennsylvania, USA, have found that people with early Parkinson’s disease are at higher risk of developing cognitive impairments if they are overweight, have disruptive sleep behaviours or experience symptoms of depression. Evaluating data…


Meet our staff – Suliana

Meet our Staff Member Suliana Manuofetoa, Parkinson’s Specialist Nurse Suliana Manuofetoa joined Parkinson’s NSW as a Parkinson’s Specialist Nurse in late March 2021. She began her nursing career eight years ago and became a Clinical Nurse Educator in Neurology four years ago. Her interest in Parkinson’s came about while nursing…


My [Parkinson’s] Life – Melanie de Jager

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s. Melanie de jager - caregiver for husband ron Melanie de Jager met her husband Ron back in Christchurch, New Zealand…


Hallucinations and Parkinson’s

How hallucinations affect people living with Parkinson’s Around 50% of people with Parkinson’s disease will experience hallucinations. But what are they and what causes them? Professor Per Odin – a neurologist and head of the Neurology Department at Lund University, Sweden – shares what you need to know about the…


A new Young Onset Support Group

Young Onset Support Group established in Sydney’s Eastern Suburbs The Eastern Suburbs Young Onset Support Group met for the first time on 20 April at Wolper Jewish Hospital in the suburb of Woollahra. Fifteen founding participants attended. The Group is facilitated by Speech Pathologists Kristin Arthur and Betsy Rumble, with…


Coming to terms with Parkinson’s progression

Coming to terms with Parkinson’s progression – Infoline Zoom with Parkinson’s Nurse Cathy Melton Parkinson’s is a chronic progressive neurological condition. The cause is not known. The symptoms are caused by the loss of dopamine producing cells in the brain.  Dopamine affects memory, mood, and movement. Even though there is…


COVID-19 vaccine safe for people living with Parkinson’s

STUDY SHOWS COVID-19 VACCINES ARE SAFE FOR PEOPLE LIVING WITH PARKINSON’S A study authored by a group of Parkinson’s experts – including neurologist Professor Bastiaan ‘Bas’ Bloem who has a global reputation – says COVID-19 vaccination with approved vaccines should be recommended for people living with Parkinson’s (unless there is…


Community Heroes program continues to generate publicity

Community Heroes program continues to generate publicity The Parkinson’s Community Heroes program launched in April 2021 (Parkinson’s Awareness Month) continues to pay off in publicity and raised community awareness for the 18 Support Groups which participated. The program allowed Support Groups to name heroes who had assisted them in their…


Parkinson’s Nurses in Action – Brian and Barbara Grant

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Exercises to improve gait

Exercises to improve gait Parkinson’s causes changes in walking.  This occurs due to the nervous system not being able to send the messages correctly to the muscles – not the muscles themselves. Therefore, to improve your walking you must give your body stimulus to activate the nerve pathways.  This can…


Bob McDonald Bega Valley Support Group

After 12.5 years as leader, Bob McDonald steps down from leading Bega Valley Support Group   Growing up in the Mallee country of South Australia as one of eight children gave Bob McDonald, now 77, early lessons in hard work and resilience. Bob, who has recently stepped down after 12…


Antioxidants may lower risk of Parkinson’s

Antioxidants may lower risk of Parkinson's By Diana Campelo Delgado, PhD A diet rich in antioxidants like vitamin C and E may lower a person’s risk of developing Parkinson’s, a large long-term study suggests. Titled Dietary antioxidants and the risk of Parkinson Disease – The Swedish National March Cohort the…


Bradykinesia

Bradykinesia = slow movement Bradykinesia implies slow movement and reduced size of movement rather than a drawn out starting of movement. It can affect one limb, or one side or your whole body and changes from moment to moment. With Parkinson's movements become slower, smaller and more difficult, people tend…


Parkinson’s Community Heroes

Parkinson’s Community Heroes off to a good start Parkinson’s NSW this year launched the Parkinson’s Community Heroes program to  both commemorate Parkinson’s Awareness Month and provide opportunities for Support Groups to recognise their local supporters – while also raising their Groups’ profiles within their communities. The Heroes program was designed…


Parkinson’s Nurses in Action – Brian

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Wellness Wednesday’s

Are you watching our Wellness Wednesday's videos? Wellness Wednesday's videos are hosted by Parkinson’s NSW and feature Exercise Physiologist Alyson Blanks and other Parkinson's health professionals. Topics include short and easy exercises you can do anywhere, nutritional advice, tips on mindfulness and other health matters. You can join in on…


Sleep and Parkinson’s

Sleep and Parkinson’s Disease By Dr. Mark Ryan Consultant Psychiatrist and Clinical Director, neuroCare Clinics Australia Sleep problems long predate the emergence of symptoms of Parkinson’s. They are apparent after the diagnosis has been made in a large majority of people with clinically apparent Parkinson’s. There is a possibility that…


Eye exam could lead to early Parkinson’s diagnosis

Eye Exam Could Lead to Early Parkinson’s Diagnosis A simple eye exam combined with powerful artificial intelligence (AI) machine learning technology could provide early detection of Parkinson’s,  according to research conducted at the University of Florida in the U.S. The progression of Parkinson’s is characterised by nerve cell decay that…


Meet our staff – Denee

Meet our Staff Member Denee Baker, NDIS Support Coordinator Denee Baker was already familiar with the Parkinson’s NSW offices when she joined the team as an NDIS Support Coordinator in late March 2021. Denee, who is completing the final year of her Bachelor of Social Work, did a university placement…


Swallowing and Communication in Parkinson’s

SWALLOWING AND COMMUNICATION [video width="1080" height="1080" mp4="http://www.parkinsonsnsw.org.au/wp-content/uploads/2021/04/Speech-and-swallowing.mp4" loop="true" autoplay="true"][/video] Many people living with Parkinson’s imagine that they have more saliva than other people. While it seems to be the case, this is not true. The reason: Because everything slows down with Parkinson’s you don’t swallow unconsciously as often. There are…


Neuroprotective benefits of exercise

Neuroprotective benefits of exercise Exercise for people with living with Parkinson’s exercise is not only healthy – it is vital for maintaining balance, mobility, and daily living activities. There is also a potential neuroprotective effect. Exercising enhances the sense of wellbeing, even across different disease stages and severities. How can…

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