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Di Trestrail of Armidale awarded OAM

Di Trestrail of Armidale awarded OAM Diane ‘Di’ Trestrail of Armidale was awarded an Order of Australia Medal (OAM) for service to people living with Parkinson’s on this year’s Queen’s Birthday Honours List. “I was honoured to receive an email asking me if I would accept this award,” said Di.…


Phone service helps navigate the Aged Care system

Phone service helps navigate the Aged Care system. Council on the Ageing NSW (COTA) has launched a new telephone service to guide people through the complexities of the Aged Care system. The new service can explain: How the Aged Care system works How to organise home or residential care Your…


7 ways to help your loved one with Parkinson’s

7 ways to help your loved one with Parkinson’s. It goes without saying that you want to do your best to help your loved one with Parkinson’s. But what does that mean in a practical sense? For most of us who aren’t natural-born caregivers, we need some time to learn…


Research Participation Opportunity

Research participation opportunity: Genetic factors influencing risk of Parkinson’s. Researchers at QIMR Berghofer Medical Research Institute are seeking participants for an Australian research study that will investigate the genetic factors that influence a person’s risk of Parkinson’s disease. The study is trying to find genetic variants that can help researchers understand, predict, and eventually prevent…


Parkinson’s NSW Support Groups online Community

Parkinson's NSW Support Groups online community. Parkinson’s NSW has an Online Community on Facebook for Support Groups. Anyone can join and benefit from the discussion and sharing. There are currently more than 100 participants in this Community. Join here or search for us on Facebook.


Using electrical energy to unfreeze gait

Using electrical energy to unfreeze gait. Some people with Parkinson’s disease experience freezing of gait every day. Unfortunately, medication that reduces motor symptoms of this disease doesn’t usually help with freezing. At McGill University in Montreal, Canada, PhD student Alexandra Potvin-Desrochers is investigating the connectivity between the regions of the…


World Parkinson’s Congress 2022

World Parkinson Congress (WPC) 2022. The 5th World Parkinson Congress (WPC) was held in Kyoto, Japan, in June 2019. Now planning is underway for the 6th Parkinson Congress to be held in Barcelona, Spain from June 7 to 10, 2022. That sounds like a long time away, but it’s not…


Students connect with seniors to demystify digital world

Students connect with seniors to demystify digital world. The Australian Government’s Office of eSafety is reaching out to high school students to assist in increasing digital literacy for older Australians and building intergenerational relationships. The Be Connected Young Mentors Program was launched in March. eSafety Project Manager Jill McNaught explained…


‘Natural killer’ cells could halt Parkinson’s

‘Natural killer’ cells could halt Parkinson’s. Researchers at the University of Georgia's Regenerative Bioscience Centre have found that ‘natural killer’ white blood cells could guard against the cascade of cellular changes that lead to Parkinson's and help stop its progression. ‘Natural killer’ cells are white blood cells that can kill…


Living well with the right nutrition

Living well with the right nutrition. Good nutrition is vital for a healthy life, but it is even more important for people living with Parkinson’s. While there is no one Parkinson’s-specific diet plan, it is important to eat a mix of whole grains, vegetables, fruits, milk and dairy products –…


Exercise helps to prevent falls

Exercise helps to prevent falls. Exercise is a proven way to prevent falls by strengthening the muscles that keep us upright and improving our balance. For the greatest benefit try a combination of exercise types – aerobic, flexibility, coordination, and strength.  This combination can be found in activities like riding…


Learn more about navigating the Aged Care system

Learn more about navigating the Aged Care system. On 2 July COTA (Council on The Ageing) will collaborate with Parkinson’s NSW to host a video-chat session featuring a presentation on Navigating the Aged Care System. There will also be time allowed for questions and answers. Here's what you need to…


Online singing helps people living with Parkinson’s

Online singing helps people living with Parkinson's. Each Thursday, people living with Parkinson’s and their carers participate in a specialised online singing program based in Coffs Harbour. Led by Music Therapist Bonnie Nilsson, the Online Parkinson’s Voice Program is funded by the Coffs Harbour Rotary Daybreak in a partnership between…


Tips on preventing falls.

Tips on preventing falls. Falls are a common symptom of Parkinson’s and because everyone has a different journey they can be experienced at various stages of progression. Depending on their severity and direction, falls can result in minor cuts and bruises at best and hospital admissions for serious or even…


New medication to quickly reverse ‘off’ time

New medication to quickly reverse ‘off’ time. The U.S. Food and Drug Administration (FDA) has approved an under-the-tongue dissolvable medication to quickly reverse ‘off’ time when Parkinson’s symptoms return between medication doses. The medication is called Kynmobi and is a thin-film formulation of apomorphine placed under the tongue. It is meant…


Parkinson’s NSW Trust appoints independent Directors

Parkinson's NSW Trust appoints independent Directors. Following a search by a professional recruitment consultant, the Parkinson’s NSW Trust has appointed two new, independent Directors. They are Annabel Crookes who is Legal & Risk Director and an Executive Director, Company Secretary at Laing O’Rourke and Andy Esteban who has been in…


Reluctant to take a break from caring?

Reluctant to take a break from caring? Although there are many options for obtaining respite support for carers to take a break, many are reluctant to do so. Concerns are normal but they need to be balanced against the risk that you will burn out. Regular breaks can give carers…


Support Group network continues to grow

Support Group network continues to grow. Parkinson’s NSW has more than 87 Support Groups, including 17 Carer Support Groups. Of those, 25 Groups are in metropolitan areas and 62 are in regional and rural locations. There are also an additional three virtual Support Groups operating via Facebook. Now the network…


Parkinson’s NSW further strengthens Board

Parkinson’s NSW further strengthens Board. Parkinson’s NSW has further strengthened its Board through the appointment of a Vice President and the addition of a new Director. Margaret Scott has been voted into the position of Vice President of Parkinson’s NSW. In this role, she will support the work of David…


Help us deliver Parkinson’s support in difficult circumstances

Help us deliver Parkinson’s support in difficult circumstances. Like you, the uncertainty of what’s going to happen during the Coronavirus Pandemic has left our Parkinson’s community vulnerable, stressed about access to medical care, and feeling extremely isolated. We’ve had to quickly adapt the way we work. Our dedicated team of…


My [Parkinson’s] Life.

My [Parkinson’s] Life. Singing Away The Parkinson’s Blues. By Martin Pryor. It was an awkward moment. My physio had just asked me to cross my arms across my chest. In doing so, my right hand started to shake rapidly. We looked at each other and simultaneously said, “What’s that about?”…


Staying physically & mentally healthy in isolation

Staying physically & mentally healthy in isolation. As humans we have strong physical and psychological needs. With the current Coronavirus (COVID-19) situation, these needs can be harder to meet. According to the Self-Determination Theory, we have three psychological needs: Autonomy is about feeling that you have choices and can work…


How are Support Groups staying in touch?

How are Support Groups staying in touch? The impact of Coronavirus (COVID-19) on Australian society has been significant. Participants of Parkinson’s NSW Support Groups have taken to technology with a passion to overcome the challenges of social isolation. Here’s how some of our Groups have chosen to stay in touch.…


Respite is Necessary for Carers

Respite is necessary for carers Respite is necessary for carers in order for them to maintain mental and physical health, and to remain effective in their caring role. Respite simply means taking a break from being a carer. There are many different types of respite support available. Some common types…

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