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New Parkinson’s Specialist Nurse in Hornsby

Suliana Manuofetoa has joined Parkinson’s NSW as a Parkinson’s Specialist Nurse based at Hornsby Ku-ring-gai Hospital in Sydney. She began her nursing career eight years ago and became a Clinical Nurse Educator in Neurology four years ago. Suliana’s interest in Parkinson’s came about while nursing patients with the disease. She…


Putt for Parkinson’s

Golf Fundraiser with Socceroos legend Mark Milligan You are invited on-course to Putt for Parkinson's Socceroos legend Mark Milligan knows the truth of Parkinson’s first hand and wants to do all he can to drive awareness and raise much needed funds to enhance the quality of life for people living…


My [Parkinson’s] Life – Fran Hayes

My [Parkinson’s] Life  Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s. Fran Hayes Fran Hayes was the second of five children and spent her early years in Hoxton Park – then…


World Parkinson Congress postponed

World Parkinson Congress postponed Due to COVID-19 and the global impact of the pandemic, the 6th World Parkinson Congress (WPC) has been postponed from 2022 to 2023. It will remain in Barcelona, Spain, with the new dates of July 4 to 7, 2023.


Steve Schiemer steps into the boxing ring

Steve Schiemer raises more than $1,000 for Parkinson’s NSW in the boxing ring Parkinson’s NSW Board Member and professional personal trainer Steve Schiemer – who is living with Parkinson’s – climbed into the ring for the Sydney Contender Boxing Match on 29 May. Steve not only won his match, but…


Support Group News

Support Group News Roundup Chinatown Bilingual Support Group In March 2021, the Chinatown Bilingual Parkinson’s Support Group met face-to-face for the first time since COVID for a lunch at a popular restaurant in Chinatown. Parkinson’s NSW Support Group Coordinator Felicity Jones was an invited guest. The group enjoyed a tai-chi…


Research: Trial of new compound NLX-112 to ease Dyskinesia

Trial of new compound NLX-112 to ease Dyskinesia Parkinson’s UK and The Michael J. Fox Foundation have partnered with biopharmaceutical company Neurolixis to support a clinical trial testing the safety, tolerability, and early efficacy of NLX-112.   This is a new compound being assessed for its ability to ease dyskinesia and the…


New round of Club Grants funding now open

New round of Club Grants funding now open Applications for the next round of Club Grants funding open on Monday, 5 July 2021. To find out more information, or to apply, visit the Office of Responsible Gambling website Victor Dominello, the Minister for Digital and Minister for Customer Service, said funding…


The importance of aerobic exercise

Put your heart into it! The importance of aerobic (cardiovascular) exercise Cardiovascular (cardio) exercise – also known as aerobic exercise – is any activity that makes you puff. It works the heart, lungs, and muscles – all of which help the body to burn  calories. The current exercise recommendations for…


Support for Parkinson’s community in State Budget

On 22 June it was announced that the NSW State Budget includes an $8.6 million package to support people living with movement disorders – including Parkinson’s. The funding will start with $1.8 million in 2021-22 with the full amount being spent over four years. The package will fund 15 specialist…


Online meetings for support groups

ONLINE meetings and information sessions Please refer to this page frequently for new topics and session dates and links to join. Important information about the online sessions: Please log in to the meeting 5-10 minutes prior to the scheduled start time To ensure meetings run smoothly, entry into the meeting…


Equine assisted therapy

Can equine-assisted therapy benefit people with Parkinson’s? Researchers from Texas Woman’s University, USA, are investigating how equine-assisted therapy – which involves working with horses to promote wellbeing – can benefit people living with Parkinson’s As part of the five-month study – funded by the non-profit Human Animal Bond Research Institute…


Parkinson’s and Menopause

We need to be having more conversations about menopause By Heather Kennedy I was first diagnosed with Parkinson’s in 2011, at the age of 41. As I approach the menopause, I’ve noticed changes in myself. First of all, I have a lower libido. I just want nothing to do with…


Research: weight, sleep & depression

Weight, sleep, and depression linked to risk of cognitive  problems in Parkinson’s Researchers at the University of Pennsylvania, USA, have found that people with early Parkinson’s disease are at higher risk of developing cognitive impairments if they are overweight, have disruptive sleep behaviours or experience symptoms of depression. Evaluating data…


Meet our staff – Suliana

Meet our Staff Member Suliana Manuofetoa, Parkinson’s Specialist Nurse Suliana Manuofetoa joined Parkinson’s NSW as a Parkinson’s Specialist Nurse in late March 2021. She began her nursing career eight years ago and became a Clinical Nurse Educator in Neurology four years ago. Her interest in Parkinson’s came about while nursing…


My [Parkinson’s] Life – Melanie de Jager

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s. Melanie de jager - caregiver for husband ron Melanie de Jager met her husband Ron back in Christchurch, New Zealand…


Hallucinations and Parkinson’s

How hallucinations affect people living with Parkinson’s Around 50% of people with Parkinson’s disease will experience hallucinations. But what are they and what causes them? Professor Per Odin – a neurologist and head of the Neurology Department at Lund University, Sweden – shares what you need to know about the…


A new Young Onset Support Group

Young Onset Support Group established in Sydney’s Eastern Suburbs The Eastern Suburbs Young Onset Support Group met for the first time on 20 April at Wolper Jewish Hospital in the suburb of Woollahra. Fifteen founding participants attended. The Group is facilitated by Speech Pathologists Kristin Arthur and Betsy Rumble, with…


Coming to terms with Parkinson’s progression

Coming to terms with Parkinson’s progression – Infoline Zoom with Parkinson’s Nurse Cathy Melton Parkinson’s is a chronic progressive neurological condition. The cause is not known. The symptoms are caused by the loss of dopamine producing cells in the brain.  Dopamine affects memory, mood, and movement. Even though there is…


COVID-19 vaccine safe for people living with Parkinson’s

STUDY SHOWS COVID-19 VACCINES ARE SAFE FOR PEOPLE LIVING WITH PARKINSON’S A study authored by a group of Parkinson’s experts – including neurologist Professor Bastiaan ‘Bas’ Bloem who has a global reputation – says COVID-19 vaccination with approved vaccines should be recommended for people living with Parkinson’s (unless there is…


Community Heroes program continues to generate publicity

Community Heroes program continues to generate publicity The Parkinson’s Community Heroes program launched in April 2021 (Parkinson’s Awareness Month) continues to pay off in publicity and raised community awareness for the 18 Support Groups which participated. The program allowed Support Groups to name heroes who had assisted them in their…


Parkinson’s Nurses in Action – Brian and Barbara Grant

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Exercises to improve gait

Exercises to improve gait Parkinson’s causes changes in walking.  This occurs due to the nervous system not being able to send the messages correctly to the muscles – not the muscles themselves. Therefore, to improve your walking you must give your body stimulus to activate the nerve pathways.  This can…


Bob McDonald Bega Valley Support Group

After 12.5 years as leader, Bob McDonald steps down from leading Bega Valley Support Group   Growing up in the Mallee country of South Australia as one of eight children gave Bob McDonald, now 77, early lessons in hard work and resilience. Bob, who has recently stepped down after 12…

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