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Parkinson’s medication and daylight savings

Parkinson's medication, sleep and daylight savings The change from Eastern Standard Time to Daylight Saving Time begins at 2am on the first Sunday in October. The clock will spring forward 1 hour. A common question for people living with Parkinson’s is how this will affect their daily medication routines. Should…


Healthy and Active for Life

Healthy and Active for Life Online is a FREE 10 week program for adults aged 60 years* and over. How does it work? The program is delivered online, in the comfort of your own home. Simply log in to your online account to complete the weekly modules and exercises. What…


What are you thinking?

In August we sent an email to all Support Group Leaders asking them what’s on their minds? What concerns or needs do they have for their Groups? Following is a consolidated summary of responses: We don‘t have the support of a Parkinson’s Specialist Nurse. Caregivers are bearing the brunt of…


Freezing of gait

  Freezing of gait is a sudden, short, temporary, unpredictable inability to walk. This occurs despite the fact that the person wants to and is trying to walk. It is described as “…feeling like my feet are stuck to the floor”.  The feet stay in place and the body continues…


Parkinson’s may start before birth

People who develop Parkinson's disease before age 50 may have been born with disordered brain cells that went undetected for decades, according to new Cedars-Sinai Medical Centre research. The research points to a drug that potentially might help correct these disease processes. "Young-onset Parkinson's is especially heartbreaking because it strikes…


Tamie Harvie appointed new Shoalhaven nurse

Tamie Harvie has joined Parkinson’s NSW as the new Parkinson’s Specialist Nurse for the Shoalhaven region. She succeeds Nina Digiglio in this role. Nina has stayed with the organisation, stepping up to become a Nurse Educator with a state-wide remit. Tamie brings to the Shoalhaven role 21 years of nursing…


Benefits of warm water exercise for Parkinson’s

People living with Parkinson’s who exercise regularly reduce the impact and progression of the disease better than those who do not. Exercising in heated water has some unique properties that enable both therapy and fitness – especially for people who can’t exercise comfortably on land. Poor balance, gait and gravity…


Anger management for caregivers

It is easy to understand why caregivers can become angry or frustrated at times. It is often a sign that our inner resources for coping with the various stressors involved in caring for someone with Parkinson’s are depleted. The lockdown due to the coronavirus pandemic can be an added stressor…


John Watkins AM joins Board of Parkinson’s NSW

John Watkins AM joins Board of Parkinson’s NSW Former Deputy Premier of NSW John Watkins, AM – who is living with Parkinson’s – has been appointed to the Board of Parkinson’s NSW. “John is highly respected in both the political and not-for-profit spheres,” said Margaret Scott, President of Parkinson’s NSW.…


Carer de-stressing exercises

Carer de-stressing exercises Whether caring begins gradually or happens suddenly, most carers will need to develop new knowledge and skills. One of the most experienced effects of caring is stress. Learning to manage your stress is an important and possibly new skill you will need to learn. If you don’t…


Faecal transplant trial may reduce discomfort felt by people living with Parkinson’s

Faecal transplant trial may reduce discomfort felt by people living with Parkinson's After a career in the health sector, Cassandra Hewett has become accustomed to bodily functions and fluids. So, when she was first presented with the option of being part of a trial that involved receiving a poo transplant,…


How hallucinations affect people living with Parkinson’s

How hallucinations affect people living with Parkinson’s Around 50% of people with Parkinson’s disease will experience hallucinations. But what are they and what causes them? Professor Per Odin – a neurologist and head of the Neurology Department at Lund University, Sweden – shares what you need to know about the…


New devices may relieve hard-to-treat symptoms

New devices may relieve hard-to-treat symptoms There are some novel research projects going on in the U.S. and Netherlands aimed at developing technologies to ease two Parkinson’s symptoms that are difficult to treat with medication. These symptoms include freezing of gait and difficulties swallowing. Vibrating socks have been developed as…


My Telehealth Experience

Louise – With Professor Dominic Rowe, Macquarie Hospital Louise – who prefers that her surname not be used – has been living with Parkinson’s for a decade but has only been living in the Port Macquarie area for the past two years. She discovered the local Parkinson’s Specialist Nurse Rachael…


7 Ways to improve your sleep

7 Ways to improve your sleep Up to 90 percent of people living with Parkinson’s find it difficult to sleep. Identifying the root causes of sleep issues is the first step. Disrupted sleep can be due to a number of things such as poor sleep hygiene, the symptoms of Parkinson’s,…


Online meetings for support groups

ONLINE meetings and information sessions Please refer to this page frequently for new topics and session dates and links to join. Important information about the online sessions: Please log in to the meeting 5-10 minutes prior to the scheduled start time To ensure meetings run smoothly, entry into the meeting…


Parkinson’s NSW YouTube channel

Looking for something good to watch? Try the Parkinson’s NSW YouTube channel: Parkinson's NSW YouTube There you will find a variety of playlists with videos offering useful tips and information – including a guide to exercise on Wellness Wednesdays and tips on improving your wellbeing on Living Well with Parkinson’s.…


Seniors boost their digital skills

Seniors boost their digital skills Older Australians are turning to digital communications like email, zoom and social media like never before, thanks to the COVID pandemic restrictions. Research from the Australian Communications and Media Authority (ACMA) shows the number of people aged 75-plus who use social media doubled from 18…


What Parkinson’s symptoms matter most

What Parkinson’s symptoms do people most want to see improve? By Simge Eva Dogan A study by charity Parkinson’s UK has examined what symptoms matter most to people with Parkinson’s disease as the condition progresses. The charity surveyed 790 people with Parkinson’s and asked each participant to list three symptoms…


Research: retinal thinning associated with hallucinations

Inner retinal thinning associated with hallucinations in Parkinson’s Researchers have found a link between visual hallucinations in people with Parkinson’s disease and the thinning of the inner retina in the eye. As part of the study – published in research journal Scientific Reports – researchers analysed clinical and demographic data from 40 people with…


Seniors Travel Card

Regional Seniors Travel Card extended for two years More than 300,000 seniors in the regions will benefit from reduced travel costs with the NSW Government committing $246 million to extend the Regional Seniors Travel Card for an additional two years. The Regional Seniors Travel Card is a $250 prepaid Visa card designed…


Parkinson’s Nurses in Action – Roslyn and Brian Stone

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


New Carer Gateway service

In-person coaching now available via Carers Gateway If you are a carer, you can currently access support and services from the Carer Gateway. From July 2021, carers Australia-wide will also be able to access a new in-person facilitated coaching service through Carer Gateway service providers within their local area. This…


New Parkinson’s Specialist Nurse in Hornsby

Suliana Manuofetoa has joined Parkinson’s NSW as a Parkinson’s Specialist Nurse based at Hornsby Ku-ring-gai Hospital in Sydney. She began her nursing career eight years ago and became a Clinical Nurse Educator in Neurology four years ago. Suliana’s interest in Parkinson’s came about while nursing patients with the disease. She…

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