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Four Happy Hormones

Four Happy Hormones Why do certain people and experiences make us feel calm, happy, or even joyful? One of the key elements for this is that our positive connections and experiences of awe and wonder actually create a chemical reaction in our brain.  This is via chemical messengers in our…


Your physical & mental wellbeing

Staying physically & mentally healthy As humans we have strong physical and psychological needs. With the current Coronavirus (COVID-19) situation, these needs can be harder to meet.  During the COVID-19 pandemic, prioritising mental health and wellbeing has been more important than ever. This World Mental Health Day – October 10 –…


Respite is Necessary for Carers

Respite is necessary for carers Respite is necessary for carers in order for them to maintain mental and physical health, and to remain effective in their caring role. [caption id="attachment_5933" align="alignnone" width="601"] Respite simply means taking a break from being a carer. There are many different types of respite support…


Carers Week 11-17 October 2020

To celebrate carers and recognise the significant contribution they make each and every day, Carers NSW is hosting a range of online wellbeing workshops and webinars during National Carers Week from 11 to 17 October 2020. These replace the activities they would normally have organised for Carers Week due to…


Finding the time to exercise

So, you’re a carer and you don’t have time to exercise… Many carers find it difficult to find time to exercise. However, you need to be fit and healthy to cope with the stresses of caring.  If the carer can’t care, both parties suffer. As little as 30 minutes of…


Speak up for yourself

speak up for yourself Self-advocacy is about speaking up in support of your rights and the rights of the person you care for. It is about negotiating to make sure you get the support you need and that you are treated with fairness and respect. Carers often feel that the…


Getting good sleep and rest

Getting good sleep and rest The physical symptoms of Parkinson’s can sometimes cause sleep disturbances and prevent adequate rest. The restorative effects of sleep can improve health and help people living with Parkinson’s  better manage the disease on a daily basis, so ensuring you get enough quality sleep is essential. The Parkinsons Foundation has…


Parkinson’s medication and daylight savings

Parkinson's medication, sleep and daylight savings The change from Eastern Standard Time to Daylight Saving Time will take place at 2am on Sunday, 4 October. The clock will spring forward 1 hour. And if you're out and about Bunnings Sausage Sizzles resume on weekend commencing October 3 in NSW. We…


COVID-19 and the link to Parkinson’s

COVID-19 and the link to Parkinson's On 23 September 2020, the ABC  published a story online  titled Experts warn coronavirus may cause 'wave' of neurological conditions including Parkinson's disease about Australian research into the potential of COVID-19 to cause longer term damage to the brain, leading to conditions such as Parkinson’s. This…


Caring for our carers

Caring for our carers If you are caring for a loved one who is living with Parkinson’s, then the Carers NSW web site is well worth a visit. Among other goals, Carers NSW aims to actively promote carer recognition and support, and support carers to navigate a changing service landscape.…


Tips on symptom and medication management

InfoLine tips on symptom and medication management The Parkinson’s InfoLine is staffed by Parkinson’s Registered Nurses who have more than 70 years of experience between them. One such Nurse is Cathy Melton who recently joined a Zoom meeting with Support Group participants. She discussed symptom and medication management and we…


How can I get up from the floor?

How can I get up from the floor? Have you ever had a fall or tripped and found yourself on the floor? It is important that when getting back up from the floor that you do so slowly and carefully. It is also good to let someone know that you…


Meet & Greet Lismore Support Group

Meet and Greet Lismore Support Group The Lismore Support Group is led by Di Lymbury – a transplant six years ago from the Hunter Valley-Newcastle Support Group. The Lismore Group had been led by a local Occupational Therapist, Anthony Zuill. However, the Group had lapsed by the time Di arrived.…


Great way to keep in contact with each other during COVID-19 and beyond

Great way to keep in contact with each other during COVID-19 and beyond Earlier this month the Support Group Leaders gathered for a Zoom meeting to share ideas on how to keep connected with their participants during COVID-19. Many ideas were shared, and people had the opportunity to talk about…


Support Groups increasingly adopt Zoom

Support Groups increasingly adopt Zoom More than 21 Parkinson’s NSW Support Groups are now meeting regularly via the video-chat application called Zoom. Zoom is free and can be used on any computer or smartphone. [caption id="attachment_5629" align="alignleft" width="338"] Bathurst Support Group Zoom meeting[/caption] Support Group Coordinator Felicity Jones helps some…


Tips on preparing for a Neurologist appointment

Tips on preparing for a Neurologist appointment Most people living with Parkinson’s see their neurologist every three to six months initially, then every six to 12 months. However, if you are experiencing problems with your Parkinson’s or its treatment, more frequent visits may be required. As you are no doubt…


People living with Parkinson’s leave work five years after diagnosis

People living with Parkinson’s leave work five years after diagnosis A Europe-wide study into the impact of Parkinson’s on employment highlights how quickly people with the condition are forced to leave work after diagnosis – and why. The study found that on average, people living with Parkinson’s leave work five…


What makes a good Support Group Leader? And why volunteer for the role?

What makes a good Support Group Leader? And why volunteer for the role? Becoming part of a Support Group Leadership Team (Committee) can be both challenging and rewarding. If, in your Group, the Leadership Team gets stuck with doing all the work… then something is wrong. The role of the…


Margaret Scott: Building sustainability through fundraising

Margaret Scott: Building sustainability through fundraising Margaret Scott is the Vice President of the Board of Parkinson’s NSW – and a fundraiser through and through. Over more than 30 years she has worked on all aspects of fundraising for disability and healthcare not-for-profits – from administering databases to organising appeals,…


Coping with anxiety due to change

Coping with anxiety due to change Many of us are slowly starting to emerge into social situations after months of various degrees of isolation imposed as a healthcare measure. Retail stores, cafes and restaurants are beginning to re-open, gyms are permitted to hold exercise classes again, and personal care services…


Parkinson’s NSW nurses drive education benefiting people living with Parkinson’s

Parkinson’s NSW nurses drive education benefiting people living with Parkinson’s Clinical Nurse Consultant Vince Carroll – who is based in the Mid North Coast Local Health District – and Sydney-based Parkinson’s Registered Nurse Julie Austin recently participated in a collaborative project with the Health and Education Training Institute (HETI) and…


Seniors Rights Service can help resolve Aged Care issues

Seniors Rights Service can help resolve Aged Care issues Some people in our community have contacted Parkinson’s NSW to talk about issues they have been having with their Aged Care Service Providers. In some cases, they have not been getting the support they are entitled to through their Home Care…


Want to join research into rural and regional Support Groups?

Want to join research into rural and regional Support Groups? Parkinson’s NSW Clinical Nurse Consultant Vince Carroll – who is based in the Mid North Coast Local Health District – is a PhD candidate at Charles Sturt University. He is conducting research to explore the models of Parkinson’s Support Group…


Don’t forget your Emergency Card

Don’t forget your Emergency Card I have Parkinson’s and Carer Emergency Cards are available from Parkinson’s NSW. Download Carer Emergency Contact Card Download I have Parkinson's Contact Card or call the InfoLine: 1800 644 1898 Complete the details on your card, then carry it with you always.

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