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Media Centre

Collaboration on Nurse Specialist program

Parkinson’s NSW and Charles Sturt University collaborate on Nurse Specialist program for western NSW Charles Sturt University is collaborating with Parkinson’s NSW and the Western NSW Primary Health Network (WNSW PHN) on a four-year Movement Disorder Nurse Specialist Pilot Program to assist people living with neurological conditions in western NSW…


Parkinson’s and REM sleep

Parkinson’s and REM Sleep Behaviour Disorder During Rapid Eye Movement (REM) sleep cycles, most people are effectively paralysed, so they don’t act out dreams. However, a third of all people with Parkinson’s disease also have REM Sleep Behaviour Disorder – a condition that removes sleep paralysis and can cause people…


Joan saves her voice

Joan saves her voice! At 65 Joan Norrie has been living with Parkinson’s for more than twenty years. The disease came upon her as a busy mum; she juggled work, family, and a complex medication regime until ultimately electing to undergo Deep Brain Stimulation (DBS) surgery in 2013. The positive…


Positive responses to first Client Satisfaction Survey

Positive responses to first Client Satisfaction Survey Parkinson’s NSW recently engaged an independent organisation to conduct the first of a series of regular surveys of the satisfaction levels of people receiving Parkinson’s NSW services and support. The independent provider managed the survey process, undertook a comprehensive analysis of the data…


Parkinson’s Nurses in action

Parkinson's Specialist nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s.  These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Balance Exercises

Simple Balance exercises to do at home  Here are some simple exercises you can do at home, to help with muscle strengthening in order to help prevent falls. Balance exercises Single Leg Balance Stand near a chair or stable object.  Hold with both hands. When steady take one hand off,…


Aligning Science Across Parkinson’s

Aligning Science Across Parkinson’s  New research into the genetic basis of Parkinson’s will be led by the University of Sydney’s Brain and Mind Centre, thanks to a AU$12.5m grant administered by the Aligning Science Across Parkinson’s (ASAP) initiative. “The outcomes of this research promise to provide new insights into the…


Free Speech Pathology

Free Speech Pathology in Sydney Who runs the group? UTS Speech Pathology students. They are supervised by a qualified Speech Pathologist. When? Appointments available on Monday, Tuesday, Thursday and Friday. Where? The UTS Clinic is in Sydney at 100 Broadway, Ultimo. We can also see people online via Telepractice. How…


Newly Diagnosed Parkinson’s Packs

Newly Diagnosed Pack now available faster online Newly diagnosed with Parkinson’s. Need information asap? Parkinson’s NSW can help with that. [caption id="attachment_5990" align="alignnone" width="480"] Call Parkinson's NSW InfoLine 1800 644 189[/caption] Now that Australia Post deliveries are less frequent – and even unreliable in some areas – we have developed…


Building your digital skills

Tech-savvy, or needing a bit of help? Leep is a not-for-profit organisation that works to enable people to use technology in an increasingly digital world. Its focus is on building digital skills and confidence, and its goal is to narrow the digital divide and reduce social and economic exclusion. The…


Four Happy Hormones

Four Happy Hormones Why do certain people and experiences make us feel calm, happy, or even joyful? One of the key elements for this is that our positive connections and experiences of awe and wonder actually create a chemical reaction in our brain.  This is via chemical messengers in our…


Your physical & mental wellbeing

Staying physically & mentally healthy As humans we have strong physical and psychological needs. With the current Coronavirus (COVID-19) situation, these needs can be harder to meet.  During the COVID-19 pandemic, prioritising mental health and wellbeing has been more important than ever. This World Mental Health Day – October 10 –…


Respite is Necessary for Carers

Respite is necessary for carers Respite is necessary for carers in order for them to maintain mental and physical health, and to remain effective in their caring role. [caption id="attachment_5933" align="alignnone" width="601"] Respite simply means taking a break from being a carer. There are many different types of respite support…


Carers Week 11-17 October 2020

To celebrate carers and recognise the significant contribution they make each and every day, Carers NSW is hosting a range of online wellbeing workshops and webinars during National Carers Week from 11 to 17 October 2020. These replace the activities they would normally have organised for Carers Week due to…


Finding the time to exercise

So, you’re a carer and you don’t have time to exercise… Many carers find it difficult to find time to exercise. However, you need to be fit and healthy to cope with the stresses of caring.  If the carer can’t care, both parties suffer. As little as 30 minutes of…


Speak up for yourself

speak up for yourself Self-advocacy is about speaking up in support of your rights and the rights of the person you care for. It is about negotiating to make sure you get the support you need and that you are treated with fairness and respect. Carers often feel that the…


Getting good sleep and rest

Getting good sleep and rest The physical symptoms of Parkinson’s can sometimes cause sleep disturbances and prevent adequate rest. The restorative effects of sleep can improve health and help people living with Parkinson’s  better manage the disease on a daily basis, so ensuring you get enough quality sleep is essential. The Parkinsons Foundation has…


Parkinson’s medication and daylight savings

Parkinson's medication, sleep and daylight savings The change from Eastern Standard Time to Daylight Saving Time will take place at 2am on Sunday, 4 October. The clock will spring forward 1 hour. And if you're out and about Bunnings Sausage Sizzles resume on weekend commencing October 3 in NSW. We…


COVID-19 and the link to Parkinson’s

COVID-19 and the link to Parkinson's On 23 September 2020, the ABC  published a story online  titled Experts warn coronavirus may cause 'wave' of neurological conditions including Parkinson's disease about Australian research into the potential of COVID-19 to cause longer term damage to the brain, leading to conditions such as Parkinson’s. This…


Caring for our carers

Caring for our carers If you are caring for a loved one who is living with Parkinson’s, then the Carers NSW web site is well worth a visit. Among other goals, Carers NSW aims to actively promote carer recognition and support, and support carers to navigate a changing service landscape.…


Tips on symptom and medication management

InfoLine tips on symptom and medication management The Parkinson’s InfoLine is staffed by Parkinson’s Registered Nurses who have more than 70 years of experience between them. One such Nurse is Cathy Melton who recently joined a Zoom meeting with Support Group participants. She discussed symptom and medication management and we…


How can I get up from the floor?

How can I get up from the floor? Have you ever had a fall or tripped and found yourself on the floor? It is important that when getting back up from the floor that you do so slowly and carefully. It is also good to let someone know that you…


Meet & Greet Lismore Support Group

Meet and Greet Lismore Support Group The Lismore Support Group is led by Di Lymbury – a transplant six years ago from the Hunter Valley-Newcastle Support Group. The Lismore Group had been led by a local Occupational Therapist, Anthony Zuill. However, the Group had lapsed by the time Di arrived.…


Great way to keep in contact with each other during COVID-19 and beyond

Great way to keep in contact with each other during COVID-19 and beyond Earlier this month the Support Group Leaders gathered for a Zoom meeting to share ideas on how to keep connected with their participants during COVID-19. Many ideas were shared, and people had the opportunity to talk about…

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