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Media Centre

My [Parkinson’s] Life – Steve Schiemer

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s.  Steve Schiemer Steve Schiemer’s life journey has taken him from Coolah NSW (population 900) to a university degree in Business,…


Posture exercises

Quick Daily Exercises for Parkinson’s Specific Symptoms Posture exercises With Parkinson’s comes poor posture.  The shoulders slump, the chin sticks out and the elbows and knees tend to bend slightly.   This makes the following more difficult to do. Deep breathing Swallowing Speaking clearly and loudly Moving, balancing and walking. You…


Parkinson’s nurses in action – Trevor

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Carers NSW webinars and workshops

Carers NSW education webinars and workshops in 2021 Carers NSW offers a number of free workshops and training for carers,  carer support group, service providers and anyone providing support to a carer. The education and training calendar is updated each month to help you plan ahead for any topics of…


Gut health and development of Parkinson’s

Gut Health and the Influence of gut microbes in Parkinson’s Approximately 65 percent of Parkinson’s patients experience impaired gut function, also referred to as gastrointestinal dysfunction. Common non-motor symptoms of Parkinson’s-related gastrointestinal dysfunction include drooling, difficulty swallowing, nausea, vomiting, bloating and constipation. These manifestations of impaired gut function can affect…


Parkinson’s and depression

Parkinson’s and depression By Dr Nichola Davies It’s well-documented that people who have been diagnosed with a chronic illness such as Parkinson’s are at higher risk of developing depression as well. Indeed, it’s estimated that 50 percent of people diagnosed with Parkinson’s will experience depression. The following scenario is a common…


Parkinson’s nurses in action – Tony and Jenny

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Zoom is here to stay

Zoom is here to stay! 2020 saw many great challenges for people. It also meant changing how we do things to keep in touch with each other. Many people embraced digital technology to connect with loved ones and to be able to work from home via Zoom, Skype, Microsoft Teams,…


Why should we fundraise?

Why should we fundraise for Parkinson’s NSW? It is not a requirement for Support Groups to fundraise for Parkinson’s NSW – however it is greatly appreciated if you choose to do so. More than 90 percent of the funding for development and delivery of essential services by Parkinson’s NSW comes…


New years exercise resolutions

your NEW YEAR Exercise RESOLUTION It's that time of year to focus on your New Year's resolution.  Hopefully, increasing your exercise is one of them.   Many people start an exercise routine but before Easter the enthusiasm has fizzled out. However, you can improve your chances for long-term success by following…


My [Parkinson’s] Life – Massud Chopan

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s.  Massud Chopan Massud Chopan, 37, was a sports fanatic at school and worked for his dad during the school holidays…


Flexibility exercises part 2

Flexibility and stretching exercises - part 2 Due to increasing rigidity or stiffness, individuals living with Parkinson's will benefit from frequent stretching and flexibility exercises. Stretching activities assist in keeping a good range of movement. These types of exercises require you to hold the position and relax. Allow the muscle to gently stretch…


Nurses in action – Paul Grant

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Women with Parkinson’s

“Finding information about being a woman with Parkinson’s was challenging” By Kathleen Reardon I was diagnosed with Parkinson’s in 2002. I’d noticed something not quite right at the age of 49 but it took over two years of disagreements about what was wrong with me. Doctors disagreed, mainly because I…


Travelling with Parkinson’s

Travelling with Parkinson’s It’s the time of year for holidays, family gatherings and travel for people with Parkinson’s. Most travel-related issues can be avoided with a little planning. Here’s a few tips. When researching your trip online use the accessibility search option Web sites like Trivago and TripAdvisor allow you…


Must our Support Group fundraise?

Must our Support Group fundraise? No. It is not compulsory for your Support Group to fundraise for Parkinson’s NSW. However, your support in all forms is appreciated. That may include raising awareness of Parkinson’s and the Support Group in your community. For example, by reaching out to local: Media Clinics and…


Parkinson’s Australia restructuring

Parkinson’s Australia restructuring The Board of Parkinsons Australia decided to restructure the organisation at its latest Annual General Meeting. The President and CEO have left their positions. The newly elected President and Board Members have embarked on a six-month consultation with senior staff of State Parkinson’s bodies. The objective is…


Humour can help you through the Festive Season

Humour can help you through the Festive Season  Studies show that humour has the power to reduce fear and anxiety, resolve conflicts, and help us weather disappointments. Research also indicates that humour benefits both your physical and psychological states. In fact, studies show that humour has the ability to provide…


Support Groups end of year gatherings

It certainly has been a disruptive year for our Support Groups but most still had the opportunity to get together and mark the end of 2020 [envira-gallery id="6265"] Pittwater Support Group Today, 24/11/2020, Parkinson’s NSW Pittwater/Warringah Support Group met for the first time since February. 23 of us arrived at…


Parkinson’s Nurses in action – Nicole

Parkinson's Specialist nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s.  These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


My DBS Journey – Sharyn

My DBS Journey - Sharyn Sharyn, aged 70 Had DBS surgery in February 2020  Sharyn has lived in Cooma for 42 years. Back in 2008 she was working in childcare when she began to think she had Parkinson’s. “I suspected I had it because two of my father’s cousins and…


Are we close to a cure for Parkinson’s?

How close are we to a cure for Parkinson’s? Saskia Mair of Parkinson’s Life interviews Sohini Chowdhury, Deputy CEO of the  Michael J Fox Foundation. How close do you think the scientific community is to finding a cure for Parkinson’s? Whenever I say the word ‘cure’, I kind of put…


Flexibility exercises part 1

Flexibility and stretching exercises  Due to increasing rigidity or stiffness, individuals living with Parkinson's will benefit from frequent stretching and flexibility exercises. Stretching activities assist in keeping a good range of movement. These types of exercises require you to hold the position and relax. Allow the muscle to gently stretch and feel lengthened. …


Managing heartburn and reflux

Managing heartburn and reflux People living with Parkinsons can experience heartburn or oesphageal reflux – and  hiatus hernia (where your stomach bulges up into your chest through an opening in your diaphragm) and ulcers may also be problematic. Parkinson’s medications can cause heartburn and it is a common problem with…

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