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Media Centre

Parkinson’s in the Country – Geoff Bourne

Making peace with ‘Parky’ For Geoff Bourne, his farm is not just his home. Those who know him say it’s his reason for being. Geoff grew up on an 1800-acre property at Ben Lomond, between Armidale and Glen Innes and has been farming the land ever since. It’s a family…


Parkinson’s Nurses in Action – Peter and Lenore

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s.  These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Meet our Staff – Rebecca

Meet our Staff Member Rebecca Manners, Parkinson’s Specialist Nurse   Rebecca Manners joined Parkinson’s NSW as a Parkinson’s Specialist Nurse late last year. She is based in Ballina and supports the Tweed, Byron, and Ballina communities of the Northern New South Wales Local Health District (LHD). Her position in Ballina…


Results of Zoom meeting survey

Results of Zoom meetings survey now in During February and March, Parkinson’s NSW conducted a survey of Zoom online meeting participants to obtain feedback on desired topics and any areas for improvement. Thank you to everyone who submitted feedback. The results are now in and are summarised below. Requested topics…


Diet and Parkinson’s

Mediterranean diet could delay Parkinson's disease onset Eating a Mediterranean diet is linked to later onset of Parkinson’s, a study by researchers at the University of British Columbia, Canada, has found. According to the research, following a Mediterranean-style diet could delay Parkinson’s disease by up to 17.4 years for women, and…


Constipation in Parkinson’s

Managing constipation in Parkinson’s Constipation is a common problem in Parkinson’s and can also predate the Parkinson’s diagnosis.  Most importantly, constipation can reduce the quality of life for people living with Parkinson’s. Constipation is the infrequent passage of hard, dry bowel motions which are difficult to pass. It is problematic…


Living with Parkinson’s webinar

In partnership with Illawarra Health & Medical Research Institute (IHMRI) As research continues into Parkinson's, we invite community members who are living with Parkinson's or who are caring for someone with the disease to tune in and hear from the experts. Speakers: IHMRI’s Professor Health Ecroyd will share information about…


New staff in key positions to strengthen operations

New staff appointed to key positions to strengthen operations Several new staff members have been appointed to key positions in order to meet increased demand for services, and to strengthen key operational areas. Fundraising Gary Cowlishaw has been appointed to the role of Donor Development in the Parkinson’s NSW Fundraising…


My [Parkinson’s] Life – Michael Buckley

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s. Michael Buckley Michael Buckley was born in New Zealand 65 years ago, but by six months of age he and…


World Parkinson’s Day 2021

World Parkinson’s Day coming up in April 11 April will be World Parkinson’s Day – part of World Parkinson’s Awareness Month. Throughout the month there will be events taking place across Australia and the globe to raise community awareness of Parkinson’s and the challenges of people living with this disease,…


Why you need more vitamin B3 in your diet

Why you need more vitamin B3 in your diet Vitamin B3, or niacin, is one of the vitamins needed for human life. While it is necessary for everyone, it may have added value for people with inherited Parkinson’s. In a recent research study from the University of Leicester, scientists examined…


Meet the staff – Gary Cowlishaw

MEET OUR STAFF Gary Cowlishaw - Donor Development Manager   More than 90 percent of Parkinson’s NSW income comes from the generosity of individuals through donations and gifts left in their wills. Without the help of generous givers, we would not be able to deliver essential services to the NSW…


Skin Swab Test Could Help Diagnose Parkinson’s

Source - The Independent.co.uk Scientists are edging closer to developing a “game-changing” test that could reduce the time it takes to diagnose Parkinson’s. A new approach could accelerate the diagnosis of Parkinson's, which develops gradually and can take years to present itself, by using simple skin swab. A study from…


My [Parkinson’s] Life – Helen Tan

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s. Helen Tan Caregiver for husband, Arthur Tan Helen and Arthur Tan met and married in Sydney over four decades years…


Parkinson’s NSW develops online education for Aged Care

Parkinson’s NSW develops online education for Aged Care During the COVID-19 pandemic, Parkinson’s NSW developed a self-guided, online education module for Aged Care support workers. Previously this education had been delivered face-to-face in order to help Aged Care workers understand the complexities of supporting residents with Parkinson’s and the importance…


Gut fungi research

New research shows gut fungi are not associated with Parkinson’s Since 2014, researchers have been studying the gut as a key area in potentially unravelling the mysteries of what causes Parkinson’s to develop. Although Parkinson’s kills brain cells that affect our ability to move and to reason, the trillions of micro-organisms…


New Parkinson’s Nurse for Tweed Region

New Parkinson’s Specialist Nurse for Tweed region People living with Parkinson’s in Northern NSW now have the support of a Rebecca Manners, a newly appointed Parkinson’s Specialist Nurse based in Ballina. [caption id="attachment_6622" align="alignnone" width="300"] Rebecca Manners - Parkinson's Specialist Nurse[/caption] Rebecca will support people living with Parkinson’s, their caregivers…


Orthostatic Hypotension

Managing orthostatic hypotension for your safety Orthostatic hypotension – also known as postural hypotension – is a form of low blood pressure. It happens when the blood vessels do not constrict (tighten) as you stand up from a sitting or lying position. It can also be experienced as a side-effect of…


Sinemet CR® medication back in stock in Australia

Sinemet® CR Shortage resvolved Merck Sharp & Dohme (manufacturer of Sinemet CR®) have advised that The Sinemet CR® (levodopa/carbidopa) shortage situation has been resolved and a registered Australian Sinemet CR® product is now available. The newly registered Sinemet CR® product will be exactly the same in formulation and appearance as…


Meet the staff – Emma Hawkins

MEET OUR STAFF Emma Hawkins - NDIS Support Coordinator Emma Hawkins joined Parkinson’s NSW as a part-time Support Coordinator early in November last year. She was already familiar with us, having worked at Parkinson’s NSW for some months in the professional placement program that is part of her final year…


Medication safety for Parkinson’s patients

Improving medication safety for Parkinson’s patients Michael Ortiz has Parkinson’s. Like many with this disease, he’s been hospitalised on many occasions for conditions other than Parkinson’s. On too many of those occasions, according to Michael, the medication levodopa –   vital to help him with his Parkinson’s symptoms – wasn’t administered on…


Shared decision making workshop

Frailty: The role of skilful communication in promoting Shared Decision Making A tailored program sponsored by the NSW Agency for Clinical Innovation, for health professionals, consumers and carers with an interest in frailty. Frailty is a complex health syndrome. For quality, person-centred care, health professionals need to be able to…


The Parkinson’s NSW InfoLine

Parkinson’s NSW InfoLine is more than a number 1800 644 189 is more than the number of the Parkinson’s NSW InfoLine; it’s your gateway to a range of services facilitated by a team of Parkinson’s Registered Nurses. [caption id="attachment_6584" align="alignnone" width="500"] The faces of the InfoLine Nurses, Julie and Cathy…


Board update

 Board leadership changes David Veness has been President of the Parkinson’s NSW Board of Directors for three years and during this time has made significant contributions by sharing his lived experience with Parkinson’s during Board discussions and decision-making. David has now stepped into the Vice President position of the Board…

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