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Media Centre

My [Parkinson’s] Life – Michael Buckley

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s. Michael Buckley Michael Buckley was born in New Zealand 65 years ago, but by six months of age he and…


World Parkinson’s Day 2021

World Parkinson’s Day coming up in April 11 April will be World Parkinson’s Day – part of World Parkinson’s Awareness Month. Throughout the month there will be events taking place across Australia and the globe to raise community awareness of Parkinson’s and the challenges of people living with this disease,…


Why you need more vitamin B3 in your diet

Why you need more vitamin B3 in your diet Vitamin B3, or niacin, is one of the vitamins needed for human life. While it is necessary for everyone, it may have added value for people with inherited Parkinson’s. In a recent research study from the University of Leicester, scientists examined…


Meet the staff – Gary Cowlishaw

MEET OUR STAFF Gary Cowlishaw - Donor Development Manager   More than 90 percent of Parkinson’s NSW income comes from the generosity of individuals through donations and gifts left in their wills. Without the help of generous givers, we would not be able to deliver essential services to the NSW…


Skin Swab Test Could Help Diagnose Parkinson’s

Source - The Independent.co.uk Scientists are edging closer to developing a “game-changing” test that could reduce the time it takes to diagnose Parkinson’s. A new approach could accelerate the diagnosis of Parkinson's, which develops gradually and can take years to present itself, by using simple skin swab. A study from…


My [Parkinson’s] Life – Helen Tan

My [Parkinson’s] Life Having Parkinson’s is just one aspect of a person’s life story. We want to share more stories of the varied lives of people currently living with Parkinson’s. Helen Tan Caregiver for husband, Arthur Tan Helen and Arthur Tan met and married in Sydney over four decades years…


Parkinson’s NSW develops online education for Aged Care

Parkinson’s NSW develops online education for Aged Care During the COVID-19 pandemic, Parkinson’s NSW developed a self-guided, online education module for Aged Care support workers. Previously this education had been delivered face-to-face in order to help Aged Care workers understand the complexities of supporting residents with Parkinson’s and the importance…


Gut fungi research

New research shows gut fungi are not associated with Parkinson’s Since 2014, researchers have been studying the gut as a key area in potentially unravelling the mysteries of what causes Parkinson’s to develop. Although Parkinson’s kills brain cells that affect our ability to move and to reason, the trillions of micro-organisms…


New Parkinson’s Nurse for Tweed Region

New Parkinson’s Specialist Nurse for Tweed region People living with Parkinson’s in Northern NSW now have the support of a Rebecca Manners, a newly appointed Parkinson’s Specialist Nurse based in Ballina. [caption id="attachment_6622" align="alignnone" width="300"] Rebecca Manners - Parkinson's Specialist Nurse[/caption] Rebecca will support people living with Parkinson’s, their caregivers…


Orthostatic Hypotension

Managing orthostatic hypotension for your safety Orthostatic hypotension – also known as postural hypotension – is a form of low blood pressure. It happens when the blood vessels do not constrict (tighten) as you stand up from a sitting or lying position. It can also be experienced as a side-effect of…


Sinemet CR® medication back in stock in Australia

Sinemet® CR Shortage resvolved Merck Sharp & Dohme (manufacturer of Sinemet CR®) have advised that The Sinemet CR® (levodopa/carbidopa) shortage situation has been resolved and a registered Australian Sinemet CR® product is now available. The newly registered Sinemet CR® product will be exactly the same in formulation and appearance as…


Meet the staff – Emma Hawkins

MEET OUR STAFF Emma Hawkins - NDIS Support Coordinator Emma Hawkins joined Parkinson’s NSW as a part-time Support Coordinator early in November last year. She was already familiar with us, having worked at Parkinson’s NSW for some months in the professional placement program that is part of her final year…


Medication safety for Parkinson’s patients

Improving medication safety for Parkinson’s patients Michael Ortiz has Parkinson’s. Like many with this disease, he’s been hospitalised on many occasions for conditions other than Parkinson’s. On too many of those occasions, according to Michael, the medication levodopa –   vital to help him with his Parkinson’s symptoms – wasn’t administered on…


Shared decision making workshop

Frailty: The role of skilful communication in promoting Shared Decision Making A tailored program sponsored by the NSW Agency for Clinical Innovation, for health professionals, consumers and carers with an interest in frailty. Frailty is a complex health syndrome. For quality, person-centred care, health professionals need to be able to…


The Parkinson’s NSW InfoLine

Parkinson’s NSW InfoLine is more than a number 1800 644 189 is more than the number of the Parkinson’s NSW InfoLine; it’s your gateway to a range of services facilitated by a team of Parkinson’s Registered Nurses. [caption id="attachment_6584" align="alignnone" width="500"] The faces of the InfoLine Nurses, Julie and Cathy…


Board update

 Board leadership changes David Veness has been President of the Parkinson’s NSW Board of Directors for three years and during this time has made significant contributions by sharing his lived experience with Parkinson’s during Board discussions and decision-making. David has now stepped into the Vice President position of the Board…


New Parkinson’s Nurse in Tweed Byron network

23 February 2021 New Parkinson’s Specialist Nurse joins Tweed Byron Network [caption id="attachment_6563" align="alignnone" width="500"] Newly appointed Parkinson’s Specialist Nurse, Rebecca Manners (centre) with (from left), The Tweed Hospital General Manager Joe McDonald, Vice President of the Parkinson’s NSW Board David Veness, Member for Tweed Geoff Provest, Norm Sander and…


Chinese New Year 2021

Lunar New Year 2021 - Year of the Ox Lunar New Year - also known as Chinese New Year - starts on Friday February 12, 2021. Chinese New Year marks the transition between zodiac signs: 2021 is the year of the Ox; 2020 was the year of the Rat. The…


Parkinson’s nurses in action – Geraldine

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Seeking support

Reasons to seek support Many of us already have levels of anxiety and stress resulting from our everyday life or illness – and now we are living with the additional pressure of COVID-19 restrictions. Sadly, there remains stigma around mental health issues and seeking support from counsellors and psychologists. Many…


Parkinson’s research partnership

Partnership with Neuroscience Research Australia results in Parkinson’s research In July 2017 Parkinson’s Specialist Nurse Vince Carroll spent four weeks at Neuroscience Research Australia (NeuRA) on a research placement program. Vince’s is based in the Mid North Coast Local Health District (MNCLHD) and his position is 50/50 co-funded by the LHD…


Men and Parkinson’s

Manning up to male Parkinson’s health Men often don’t like discussing anything health related.  Subsequently, serious health concerns and potential resources and places to go for assistance are not easily shared among male friends. In Australia, men on average live five years less than women for a variety of reasons…


Meet the staff – Naomi Dodd NDIS Support Coordinator

MEET OUR STAFF Naomi Dodd - NDIS Support Coordinator Naomi Dodd joined Parkinson’s NSW as NDIS Support Coordinator in mid-January 2021. Naomi brings to the role more than a decade of experience in aged care, disability support, case management and support coordination. She is Australian born but has worked in these…


10 points to ponder!

10 POINTS TO PONDER... The dumbest thing I ever bought was a 2020 planner. 2019: Stay away from negative people. 2020: Stay away from positive people. The world has turned upside down. Old folks are sneaking out of the house & their kids are yelling at them to stay indoors!…

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