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Media Centre

Tips on preventing falls.

Tips on preventing falls. Falls are a common symptom of Parkinson’s and because everyone has a different journey they can be experienced at various stages of progression. Depending on their severity and direction, falls can result in minor cuts and bruises at best and hospital admissions for serious or even…


New medication to quickly reverse ‘off’ time

New medication to quickly reverse ‘off’ time. The U.S. Food and Drug Administration (FDA) has approved an under-the-tongue dissolvable medication to quickly reverse ‘off’ time when Parkinson’s symptoms return between medication doses. The medication is called Kynmobi and is a thin-film formulation of apomorphine placed under the tongue. It is meant…


Parkinson’s NSW Trust appoints independent Directors

Parkinson's NSW Trust appoints independent Directors. Following a search by a professional recruitment consultant, the Parkinson’s NSW Trust has appointed two new, independent Directors. They are Annabel Crookes who is Legal & Risk Director and an Executive Director, Company Secretary at Laing O’Rourke and Andy Esteban who has been in…


Reluctant to take a break from caring?

Reluctant to take a break from caring? Although there are many options for obtaining respite support for carers to take a break, many are reluctant to do so. Concerns are normal but they need to be balanced against the risk that you will burn out. Regular breaks can give carers…


Support Group network continues to grow

Support Group network continues to grow. Parkinson’s NSW has more than 87 Support Groups, including 17 Carer Support Groups. Of those, 25 Groups are in metropolitan areas and 62 are in regional and rural locations. There are also an additional three virtual Support Groups operating via Facebook. Now the network…


Parkinson’s NSW further strengthens Board

Parkinson’s NSW further strengthens Board. Parkinson’s NSW has further strengthened its Board through the appointment of a Vice President and the addition of a new Director. Margaret Scott has been voted into the position of Vice President of Parkinson’s NSW. In this role, she will support the work of David…


Help us deliver Parkinson’s support in difficult circumstances

Help us deliver Parkinson’s support in difficult circumstances. Like you, the uncertainty of what’s going to happen during the Coronavirus Pandemic has left our Parkinson’s community vulnerable, stressed about access to medical care, and feeling extremely isolated. We’ve had to quickly adapt the way we work. Our dedicated team of…


My [Parkinson’s] Life.

My [Parkinson’s] Life. Singing Away The Parkinson’s Blues. By Martin Pryor. It was an awkward moment. My physio had just asked me to cross my arms across my chest. In doing so, my right hand started to shake rapidly. We looked at each other and simultaneously said, “What’s that about?”…


Staying physically & mentally healthy in isolation

Staying physically & mentally healthy in isolation. As humans we have strong physical and psychological needs. With the current Coronavirus (COVID-19) situation, these needs can be harder to meet. According to the Self-Determination Theory, we have three psychological needs: Autonomy is about feeling that you have choices and can work…


How are Support Groups staying in touch?

How are Support Groups staying in touch? The impact of Coronavirus (COVID-19) on Australian society has been significant. Participants of Parkinson’s NSW Support Groups have taken to technology with a passion to overcome the challenges of social isolation. Here’s how some of our Groups have chosen to stay in touch.…


Respite is Necessary for Carers

Respite is necessary for carers Respite is necessary for carers in order for them to maintain mental and physical health, and to remain effective in their caring role. Respite simply means taking a break from being a carer. There are many different types of respite support available. Some common types…


Meet & Greet: Chinatown Bilingual

Meet & Greet: Chinatown Bilingual The Chinatown Bilingual Support Group was established in 2005 and is unusual in that it is based not on geography, but on a shared culture and language.   The Group has more than 40 active members who travel from all over Sydney to attend meetings…


New Addition to NDIS Team

New addition to the NDIS team Parkinson’s NSW Social Worker and NDIS Support Coordinator Melanie Browning has taken maternity leave. In her absence this role will be taken up by Julie Mavraidis. Julie has personal experience with both the NDIS and Parkinson’s and also brings strong professional experience to the…


Focus remains on break-even by 30 June

Focus remains on break-even by 30 June Despite the challenges of the Coronavirus situation (shared by the business sector and not-for-profits alike) Parkinson’s NSW remains focused on achieving break-even financial results by the end of fiscal 2019-2020. "We have an extremely capable and experienced Board in place, and there is…


Pharmacy Home Delivery Service

Pharmacy Home Deliver Service Australia Post has teamed up with the Pharmacy Guild of Australia to deliver medicines via a contactless pharmacy home delivery service. The measures include: Continued dispensing arrangements for the ongoing supply PBS subsidised medicines without a prescription will be extended to 30 June 2020. A home…


What are you Grateful for Today?

What are you grateful for today? Due to the COVID-19 pandemic, many of us are in quarantine or social isolation. Parkinson’s NSW Program Officer Exercise Alyson Blanks came across this list of Daily Quarantine Questions on Facebook and thought it was worth sharing with our Parkinson’s community. She recommends that…


New Director Appointed to the Board

New Director Appointed to Board The Board of Parkinson’s NSW has been further strengthened through the appointment of Denise Thomas. She is currently the Chief Executive Officer of MetroRehab Hospital. Denise started her career as a Registered Nurse at St Vincent’s Hospital Sydney and then went to hold management and…


COTA Supports Government Advice on COVID-19

COTA Supports Government Advice on COVID-19 Council on the Ageing (COTA) Australia has endorsed Government advice that all older people should remain at home as much as possible and to take precautions when outside their home. COTA Australia Chief Executive, Ian Yates AM, said the Prime Minister’s advice for all…


Use Technology to Socialise while in Isolation

Use Technology to Socialise while in Isolation As most of us are at home practising social isolation, video-chatting can help you stay in touch with your fellow Support Group participants, friends and family. A guide on how to make a video call using a smart phone, or your desktop or…


Tips for Managing Carer Stress

Tips for Managing Carer Stress According to Carers NSW, key contributors to carer stress include: The daily physical and emotional demands of caring Lack of choice Conflict and frustration Lack of support Social isolation The greater the physical and emotional demands of your caring role, the more likely you are to…


Importance of Planning Ahead for Carers

Importance of Planning Ahead for Carers Carers are often focused on the immediate challenges of caring that it can be difficult to find time to make emergency or long-term plans, or to make sure their expertise is passed on to people who can cover for them when needed. The vision…


How to Fit Regular Exercise into Your Day

How to Fit Regular Exercise into your Day We all seem to busier than we’ve ever been before and fitting exercise into your day can be hard – especially now there are voluntary isolation and social distancing requirements to meet. However, if you have Parkinson’s you need to find time.…


Mick’s DBS Journey

Mick's DBS Story Mick, aged 65 Had DBS surgery in October 2010  I was diagnosed with Parkinson’s in August 2002. My father had it and I went through the symptoms I had developed with him and was able to selfdiagnose. My GP then confirmed it. I had dyskinesia (which is…


Meet & Greet: Ashfield

Meet and Greet: Ashfield The Ashfield (Sydney) Support Group was established in March 2019, so it is now celebrating its first anniversary with Parkinson’s NSW. The Group meets in the Cardinal Freeman Village – a retirement community – and is open to members of the public as well as residents…

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