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Media Centre

Flexibility exercises part 2

Flexibility and stretching exercises - part 2 Due to increasing rigidity or stiffness, individuals living with Parkinson's will benefit from frequent stretching and flexibility exercises. Stretching activities assist in keeping a good range of movement. These types of exercises require you to hold the position and relax. Allow the muscle to gently stretch…


Nurses in action – Paul Grant

Parkinson’s Specialist Nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s. These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


Women with Parkinson’s

“Finding information about being a woman with Parkinson’s was challenging” By Kathleen Reardon I was diagnosed with Parkinson’s in 2002. I’d noticed something not quite right at the age of 49 but it took over two years of disagreements about what was wrong with me. Doctors disagreed, mainly because I…


Travelling with Parkinson’s

Travelling with Parkinson’s It’s the time of year for holidays, family gatherings and travel for people with Parkinson’s. Most travel-related issues can be avoided with a little planning. Here’s a few tips. When researching your trip online use the accessibility search option Web sites like Trivago and TripAdvisor allow you…


Must our Support Group fundraise?

Must our Support Group fundraise? No. It is not compulsory for your Support Group to fundraise for Parkinson’s NSW. However, your support in all forms is appreciated. That may include raising awareness of Parkinson’s and the Support Group in your community. For example, by reaching out to local: Media Clinics and…


Parkinson’s Australia restructuring

Parkinson’s Australia restructuring The Board of Parkinsons Australia decided to restructure the organisation at its latest Annual General Meeting. The President and CEO have left their positions. The newly elected President and Board Members have embarked on a six-month consultation with senior staff of State Parkinson’s bodies. The objective is…


Humour can help you through the Festive Season

Humour can help you through the Festive Season  Studies show that humour has the power to reduce fear and anxiety, resolve conflicts, and help us weather disappointments. Research also indicates that humour benefits both your physical and psychological states. In fact, studies show that humour has the ability to provide…


Support Groups end of year gatherings

It certainly has been a disruptive year for our Support Groups but most still had the opportunity to get together and mark the end of 2020 [envira-gallery id="6265"] Pittwater Support Group Today, 24/11/2020, Parkinson’s NSW Pittwater/Warringah Support Group met for the first time since February. 23 of us arrived at…


Parkinson’s Nurses in action – Nicole

Parkinson's Specialist nurses in action Parkinson’s Specialist Nurses are highly trained and experienced nurses based in communities of need. They are dedicated to supporting local people living with Parkinson’s.  These Nurses are funded 50/50 by Parkinson’s NSW and the Local Health District in which they are based. This series of…


My DBS Journey – Sharyn

My DBS Journey - Sharyn Sharyn, aged 70 Had DBS surgery in February 2020  Sharyn has lived in Cooma for 42 years. Back in 2008 she was working in childcare when she began to think she had Parkinson’s. “I suspected I had it because two of my father’s cousins and…


Are we close to a cure for Parkinson’s?

How close are we to a cure for Parkinson’s? Saskia Mair of Parkinson’s Life interviews Sohini Chowdhury, Deputy CEO of the  Michael J Fox Foundation. How close do you think the scientific community is to finding a cure for Parkinson’s? Whenever I say the word ‘cure’, I kind of put…


Flexibility exercises part 1

Flexibility and stretching exercises  Due to increasing rigidity or stiffness, individuals living with Parkinson's will benefit from frequent stretching and flexibility exercises. Stretching activities assist in keeping a good range of movement. These types of exercises require you to hold the position and relax. Allow the muscle to gently stretch and feel lengthened. …


Managing heartburn and reflux

Managing heartburn and reflux People living with Parkinsons can experience heartburn or oesphageal reflux – and  hiatus hernia (where your stomach bulges up into your chest through an opening in your diaphragm) and ulcers may also be problematic. Parkinson’s medications can cause heartburn and it is a common problem with…


Can we fundraise for ourselves

Can our Support Group fundraise for local projects? Yes. This is one of the reasons why Parkinson’s NSW now requires an Annual Plan from all of its Support Groups. If you have a local Parkinsons-related project you want to pay for from local fundraising, it must be included in your…


Active and Healthy

State Government initiative: NSW Active and Healthy  Healthy and Active Online is a 10-week free program. It is designed for independent older adults aged 60 years and over, who currently do not participate in physical activity programs and would be considered a beginner. The program covers exercise and healthy nutrition…


My [Parkinson’s] Life

My [Parkinson's] Life Never quit, even in difficult times... Sandra Elms Sandra Elms was born in England but has spent several periods of her life in Australia – firstly as a child growing up in Perth with her parents and sister, then as an 18-year-old travelling around with a friend…


Virtual Dance for Parkinson’s classes in Mandarin

Virtual Dance for Parkinson’s classes in Mandarin To expand the access and inclusivity of Dance for Parkinson's Australia (DPA) classes, virtual dance classes for the Chinese community are now being piloted. These free classes will be taught in Mandarin by an experienced Dance for Parkinson's teacher. Classes will be seated…


Voice changes for early Parkinson’s diagnosis?

Voice changes for early Parkinson’s diagnosis? Researchers at Monash University in Melbourne are studying the vocal cords of people with Parkinson’s to determine whether measuring voice changes – an early sign of the condition –could improve early diagnosis. As part of the trial, 31 people with different severities of Parkinson’s…


Exercising in different climates

Research into exercise in different climates Researchers at James Cook University (JCU) and La Trobe University conducting research with ambulatory patients who are performing twice-weekly exercises that  include aerobics plus strengthening or flexibility training. Research has found that Parkinson’s patients who exercise for at least 2.5 hours weekly also experience a slower decline in their…


Driving and Parkinson’s

Advice on driving with Parkinson’s Surrendering your driver’s license is like surrendering your independence – but unfortunately that time must come at some point in your Parkinson’s journey. It is important to remember that Parkinson’s can affect your ability to self-evaluate. Therefore, it is a good starting point to discuss…


COTA hosts Navigating Home Care Packages Zoom

COTA hosts Navigating Home Care Packages Zoom On 4 November Mary Bills of the Council on the Ageing (COTA) hosted a Zoom meeting for Parkinson’s NSW Support Group participants about Navigating Home Care Packages. Mary is Project Officer – Aged Care Navigators Trial at COTA. Her Zoom presentation was attended…


Port Macquarie Carer Support Group pottery class

Port Macquarie Parkinson’s Carer Support Group Pottery Class written by Sue Faulkner Giving something new a try and having some fun.  This was the idea behind this month’s activity.  A small group from the Port Macquarie Parkinson’s Carer Support Group took themselves out of their comfort zone and look what…


Useful Advocacy Organisations

By definition advocacy is an activity by an individual or group that aims to influence decisions within political, economic, and social institutions.  Advocacy includes activities and publications to influence public policy, laws and budgets by using facts, their relationships, the media, and messaging to educate government officials and the public.* Useful advocacy organisations Australian Government Aged Care Quality and…


Your physical & mental wellbeing

Staying physically & mentally healthy As humans we have strong physical and psychological needs. With the current Coronavirus (COVID-19) situation, these needs can be harder to meet.  prioritising your mental and physical health and wellbeing has never been more important than now. According to the Self-Determination Theory, we have three psychological…

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