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Media Centre

Shaken not Stirred

Shaken not Stirred By Lisa Ride This poem is about my condition; I hate to call it a disease But that’s the way they label it, and you can tell that I’m displeased See, I’m only in my fifties; the time when most folks plan their life With cruises down…


Parkinson’s NSW to become NDIS provider

The application process for Parkinson’s NSW to become a Registered National Disability Insurance Scheme (NDIS) Provider is underway and expected to be complete before mid year. Once this process is complete, we plan to register as a provider of services under My Aged Care as well. This will enable Parkinson’s…


Colour My World

An accomplished artist recently showed his work in an exhibition called Colour my World at Grafton Regional Gallery. His name is David Carroll and he is living with Parkinson’s. David – now in his early seventies – was diagnosed with Parkinson’s two years ago but he recognised some symptoms as…


Question time with a Parkinson’s researcher

Associate Professor Kay Double is based at The Brain and Mind Centre of The University of Sydney. She is a neurochemist who has been researching Parkinson’s for 25 years. Her work focuses on understanding why specific brain cells die in Parkinson’s disease so more targeted treatments can be developed. Q:…


Finding a cure for Parkinson’s

When will a cure be found? When will life with Parkinson’s be better? There’s now a whole body of research done by researchers which we can tap into. That’s going to make discoveries in Parkinson’s move faster.” Among all the questions raised by Parkinson’s, I suspect these two are the…


Ellyse Perry Pitches in for Parkinson’s

Cricket champion Ellyse Perry honoured by Newman’s Own Foundation Newman’s Own Foundation, founded by the late actor and philanthropist Paul Newman, has announced that champion cricketer Ellyse Perry is one of seven Australian sports stars being acknowledged in a special charity grants program. In recognition of her ongoing commitment to…


NSW Seniors Festival 2019

With NSW Seniors Festival starting from 13th till 24th February we have put together some top picks for this year. There are many more activities and events across the state so be sure to search on your local council website and the NSW Seniors Festival website for what’s happening near…


$30 million grant for Parkinson’s medical research

Australian Government grant of $30 million for Parkinson’s medical research The Facts On 30 January Federal Health Minister Greg Hunt announced funding of $30 million for a five-year research program to evaluate the effectiveness of existing drugs in treating Parkinson’s. The drug trial funding has been granted to the Australian…


Parkinson’s Nurse appointed in Port Macquarie

[caption id="attachment_3793" align="alignleft" width="212"] Port Macquarie Parkinson's NSW nurse Rachael Mackinnon[/caption] People with Parkinson’s disease in the Port Macquarie area are set to benefit from the appointment of a specialist neurological nurse trained in the care and treatment of people with the neurodegenerative condition. The appointment of a Parkinson’s nurse…


Emergency Contacts

EMERGENCY CONTACTS FOR URGENT ASSISTANCE AND GENUINE EMERGENCIES DIAL 000 LIFELINE Website 13 11 14 BEYONDBLUE Website 1300 22 4636 SES (STATE EMERGENCY SERVICE) Website 132 500 POISONS INFORMATION CENTRE 13 11 26 Keep handy the following contact details specific to you and your local area your GP your local hospital…


How to stay festively fit

During the Festive Season many of us find exercise becomes less of a priority as to-do lists grow longer and longer. However, for people with Parkinson’s, missing your exercise is not an option. Here are some tips to help motivate you to keep Parkinson’s fit, over the Festive Season. DOWNLOAD…


Parkinson’s Travel Tips

‘Tis the season for holidays, family gatherings and travel for people with Parkinson’s. Most issues can be avoided with a little planning. Parkinson’s NSW is here to help. DOWNLOAD TRAVEL TIPS The InfoLine is your single point of contact for support from our nurses, or for any other information you…


Parkinson’s nurse research scores goals

A major research project into the effectiveness of neurological nurses supporting people with Parkinson’s in regional communities has passed another major milestone. Stage 1 – a literature review – has been completed and is already attracting keen interest. Stage 2 is now well underway. This involves an analysis of data…


Support Group Conference 2018

More than 90 representatives from Parkinson’s NSW Support Groups from across NSW recently participated in our annual Support Group Conference in Sydney. Participants heard inspirational speakers, received updates on the latest in research and treatments for Parkinson’s, and had many opportunities to share ideas with other people living with Parkinson’s.…


$300,000 in research grants awarded

Parkinson’s NSW awarded grants totalling $300,000 to four prominent researchers at the Support Group Conference Annual Dinner in Sydney last month. A number of leading Parkinson’s researchers, their publications and ongoing research projects were assessed by the Research Advisory Board of Parkinson’s NSW before the final recipients were selected. The…


Parkinson’s NSW Members Elect New Board

Members of Parkinson’s NSW elected a new, skills-based Board of six Directors on 24 October 2018. The new appointees will serve three-year terms. Both past Directors and new candidates were eligible for the election which was managed by an independent outside service provider – the Australian Election Company. Past Directors…


Demand for services keeps growing

The annual Parkinson’s NSW Unity Walk in the Park attracted more than 1,300 walkers and volunteers across NSW on 26 August. Thanks to their combined efforts it was once again a successful fundraising event. Although the Walk is over, demand for the services of Parkinson’s NSW is ongoing and growing.…


New support group in Kiama

Kiama on the South Coast of NSW now has a Parkinson’s Support Group. It was established in April 2018 and now has 30 members comprising both people living with Parkinson’s and carers. “Some of us had been attending a Solutions for Wellbeing exercise class and the idea for a Kiama…


Parkinson’s NSW NDIS Nurse Advocate

Need help with NDIS? Call our Nurse Advocate Parkinson’s NSW now has a registered nurse devoted to advocating for people with Parkinson’s applying for the National Disability Insurance Scheme (NDIS). Margi Edmondson is a nurse and nurse educator with more than 35 years of experience – including five at Parkinson’s…


Your questions answered

Many questions? Call this number for answers Parkinson’s NSW’s InfoLine service provides expert support for anyone touched by Parkinson’s. When you call the InfoLine on 1800 644 189 you will be speaking to Registered Nurses experienced on the topic of Parkinson’s – not a call centre staffed by generalists. Our…


Walking the Walk

More than 1,300 people joined the 11th annual Unity Walk fundraiser on 26 August. This year the event raised more than $147,000. Over the past decade, Unity Walks have involved more than 15,000 people raising in excess of $1 million - all of which is contributed to vital research and…


My Health Record

Are you in or out of My Health Record? This year you will have a My Health Record automatically created by the Australian Government. If you don’t want a record created for you, you have until 15 November 2018 to opt out by visiting the My Health Record website or…


World Parkinsons Congress 2019

The 5th World Parkinson Congress (WPC) will take place in Kyoto, Japan from June 4 to 7 in 2019. WPC is specifically designed for people living with Parkinson’s. Past attendees said they met competent and optimistic patients and scientists, made life-long friends, and found the Congress both fun and inspiring.…


Art for Parkinson’s Workshops

Art the Parkie's Way Art for Parkinson's is an innovative art programme for people living with Parkinson's. It is designed to be a "can do"  activity for people whose abilities have been compromised by the disease. Research shows that creativity can be enhanced in people living with Parkinson's. “When I’m…

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