SHARE YOUR EXPERIENCE OF LIVING WITH PARKINSON'S

Thousands of people in NSW have been diagnosed with Parkinson's Disease under the age of 65, however there is little information about the experiences of people in this 'younger onset' group. This survey is part of a research project that aims to develop a richer picture of the experiences and needs of this group.

If you are: aged under 65, have Parkinson's, and live in New South Wales, then we would like to hear your views and experiences. The aim of the survey is to improve understanding of the experiences of people aged 65 or younger who are living with Parkinson's, and to identify your needs for improved support, services and information.

Please click here to access the survey

If you would like a printed version of this survey please contact 1800 644 189 or email infoline@parkinsonsnsw.org.au

Do you have Parkinson's Disease?
Do you have difficulties with memory and other thinking functions (cognition)?
Would you like to improve your memory and thinking functions?

We invite you to participate in this group-based study where we aim to improve memory and wellbeing in people with Parkinson's Disease.

In order to participate, you will need to:
1. Attend the Parkinson's Research Clinic at the Brain & Mind Research Institute, Camperdown where you will undergo a neurological assessment and an assessment of memory and other thinking
functions.
2. Attend the group-based cognitive training program at Camperdown twice-weekly for seven weeks (two hours per session).
Neuropsychologists will provide you with information regarding healthy brain ageing, teach you strategies to assist memory and cognition and provide you with computer-based activities that
'exercise' the brain.
3. Undergo repeat neuropsychological assessment of cognition after 7 weeks.

This research is being conducted by Dr Simon Lewis and A/Prof Sharon Naismith. If you are interested in participating or would like more information, please call Donna McCade 9351 0702 or email pdclinic@med.usyd.edu.au